1. < Headache & Migraine

Migraine: Did botox work for you?

Posted by johnetteg @johnetteg, Nov 25, 2018

I had Botox injections for migraines 2 1/2 weeks ago and have been feeling sick. My vision is blurry, I have pressure in my head, I’m lightheaded, I’m having heart palpitations, high blood pressure and heart rate, my stomach has felt sick, I’m having trouble concentrating and focusing. Has anyone else experienced this? It’s really starting to scare me.

Interested in more discussions like this? Go to the Headache & Migraine Support Group.

rely1ngonhelp | @rely1ngonhelp | Jul 7, 2022
In reply to @sundance6 "Despite some of you saying not to try Botox Therapy for Migranes, I did anyway! What..." + (show)
@sundance6

Despite some of you saying not to try Botox Therapy for Migranes, I did anyway! What a mistake! Toxins such as Botox don't set well in my body.It has been almost three weeks since my treatment. I have been having the worse headaches than before I started. I have been having severe nick and shoulder pain. I get very lathargic and depressed because I have them all the time. Doctor said it just happens.Can someone give me some feedback as to if they have had the treatment and any side effects you may experienced. I go to bed with a headache and wake up with one.I won't do another treatment!Sundance

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I have been getting them and if I am correct I didn't have any serious side effects but if you don't feel comfortable with them yourself. You have the choice to say no. It is ultimately up to you.

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Mentor
Rachel, Volunteer Mentor | @rwinney | Jul 7, 2022
In reply to @icart "I understand you, Botox has ruined my life, I had Botox shots last Aug. the first..." + (show)
@icart

I understand you, Botox has ruined my life, I had Botox shots last Aug. the first shots didn't help much the Dr. said to come back and I got another set of shots on my forehead, after the second session i developed a pain in my head, worse than migraines, I've had it for almost a year, when I cough its excruciating pain have been to 4 Neurologists and because it doesn't show up on the Cat Scan or MRI they just don't know how to treat this, it is so demoralizing I am living with pain every day, and on top of it I still get the migraines.
I would never get Botox again it ruined my life.
Icart

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Hello @icart. I'm sorry that you've experienced more pain since receiving botox for migraine. Given MRI and CT scans are normal and 4 neurologists have no answer about your pain, Central Sensitization Syndrome (CSS) might be worth researching. Are you familiar with CSS?

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1 reply
icart | @icart | Jul 7, 2022
In reply to @rwinney "Hello @icart. I'm sorry that you've experienced more pain since receiving botox for migraine. Given MRI..." + (show)
@rwinney

Hello @icart. I'm sorry that you've experienced more pain since receiving botox for migraine. Given MRI and CT scans are normal and 4 neurologists have no answer about your pain, Central Sensitization Syndrome (CSS) might be worth researching. Are you familiar with CSS?

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Hello Rachel,
No I am not familiar with CSS. Some things don't show up on tests, and if they don't most doctors cannot see the problem, it takes a very good diagnostician to pin point something that is out of the box, this is what I am counting on, to the day when a Dr. finds my problem and once he does only then can it be treated, I realize that I have an isolated case.
thank you for your advise
Icart

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1 reply
Mentor
Rachel, Volunteer Mentor | @rwinney | Jul 7, 2022
In reply to @icart "Hello Rachel, No I am not familiar with CSS. Some things don't show up on tests,..." + (show)
@icart

Hello Rachel,
No I am not familiar with CSS. Some things don't show up on tests, and if they don't most doctors cannot see the problem, it takes a very good diagnostician to pin point something that is out of the box, this is what I am counting on, to the day when a Dr. finds my problem and once he does only then can it be treated, I realize that I have an isolated case.
thank you for your advise
Icart

Jump to this post

Here's a video presentation on CSS by Dr. Sletten from the Mayo Clinic Pain Rehabilitation Center:


Perhaps what he explains will resonate as to why you have unexplainable pain from a very routine botox injection that typically does not cause pain as you describe.

Are you taking medications for the pain? Do you have pain anywhere else or is it isolated to your head?

REPLY
2 replies
icart | @icart | Jul 13, 2022
In reply to @rwinney "Here's a video presentation on CSS by Dr. Sletten from the Mayo Clinic Pain Rehabilitation Center:..." + (show)
@rwinney

Here's a video presentation on CSS by Dr. Sletten from the Mayo Clinic Pain Rehabilitation Center:


Perhaps what he explains will resonate as to why you have unexplainable pain from a very routine botox injection that typically does not cause pain as you describe.

Are you taking medications for the pain? Do you have pain anywhere else or is it isolated to your head?

Jump to this post

I am finding it frustrating that they ask for my email address and password each time, I thought if I was a registered member,
I would be able to access everything with no trouble.
Dana
________________________________

REPLY
1 reply
Mentor
Rachel, Volunteer Mentor | @rwinney | Jul 13, 2022
In reply to @icart "I am finding it frustrating that they ask for my email address and password each time,..." + (show)
@icart

I am finding it frustrating that they ask for my email address and password each time, I thought if I was a registered member,
I would be able to access everything with no trouble.
Dana
________________________________

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@icart Hi Dana, what are you having trouble accessing?

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jeanette56 | @jeanette56 | Oct 27, 2022
In reply to @sundance6 "Despite some of you saying not to try Botox Therapy for Migranes, I did anyway! What..." + (show)
@sundance6

Despite some of you saying not to try Botox Therapy for Migranes, I did anyway! What a mistake! Toxins such as Botox don't set well in my body.It has been almost three weeks since my treatment. I have been having the worse headaches than before I started. I have been having severe nick and shoulder pain. I get very lathargic and depressed because I have them all the time. Doctor said it just happens.Can someone give me some feedback as to if they have had the treatment and any side effects you may experienced. I go to bed with a headache and wake up with one.I won't do another treatment!Sundance

Jump to this post

My Dr is suggesting that I try Botox for my chronic migraine headaches. I have them about 5times a week.

REPLY
4 replies
Mentor
Rachel, Volunteer Mentor | @rwinney | Oct 27, 2022
In reply to @jeanette56 "My Dr is suggesting that I try Botox for my chronic migraine headaches. I have them..." + (show)
@jeanette56

My Dr is suggesting that I try Botox for my chronic migraine headaches. I have them about 5times a week.

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Hi @jeanette56, welcome to Connect. Having migraine episodes that often is challenging and can become quite disruptive to everyday life. I certainly feel for you having been through it myself.

Here's a conversation you may find helpful:
Migraine Headache- What helps you Cope-
https://connect.mayoclinic.org/discussion/migraine-headache/
Some folks do experience migraine relief from Botox injections and swear by the treatment. Unfortunately, its one of those things where you dont necessarily know until you try. Are you considering Botox? What other migraine treatments have you tried, if any?

REPLY
elmay | @elmay | Oct 28, 2022
In reply to @jeanette56 "My Dr is suggesting that I try Botox for my chronic migraine headaches. I have them..." + (show)
@jeanette56

My Dr is suggesting that I try Botox for my chronic migraine headaches. I have them about 5times a week.

Jump to this post

After endless tests including biopsies for temporal arteritis, I am having an occipital nerve block next week in hopes that it will help. Anyone else have a nerve block shot?

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1 reply
migizii | @migizii | Oct 28, 2022
In reply to @jeanette56 "My Dr is suggesting that I try Botox for my chronic migraine headaches. I have them..." + (show)
@jeanette56

My Dr is suggesting that I try Botox for my chronic migraine headaches. I have them about 5times a week.

Jump to this post

Hi @jeanette56….I am chronic migraine patient who has been using Botox in my tool kit for many years to reduce migraines….with many interventions, I have reduced them from 15-20 a month to 5-8. Botox did not work at all the first few times I did it, but I had read that sometimes it takes a few times to work. I weathered the storm (I am not a fan of all those shots every 3 months), but felt so much relief when the fourth attempt worked - which was going to be my last try. Good luck with your decision as what works for one of us, does not necessarily work for another one.

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