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DiscussionSepsis: What's your experience recovering from sepsis?
Intensive Care (ICU) | Last Active: May 1 8:37am | Replies (79)Comment receiving replies
Replies to "I have a daughter that three years ago had part of her colon taken out. The..."
Hello @pumpernickel
I am so sorry to hear about your daughter. Just short of 3 years ago I had cellulitis of my arm and was quite surprised and disturbed to go into sepsis. It was the worst experience of my life (and I've had breast cancer twice). It is truly a game changer for your body overall. it also sounds like your daughter still has issues that need to be addressed medically. I know, first hand, that's easier said than done due to costs, availability, access - so many things. I can share this.....fight the medical system, despite how difficult and make sure your daughter is getting the medical care and support she needs. Make sure and ask if they can provide financial assistance and get all you can to reduce that stress factor. Also, I didn't have complications in hospital from the sepsis but came close. I was 62 at the time and I have never felt the same since. There are psychological traumas I still feel around illness and the memories of the sepsis. I feel tired, have gained weight, have odd, unexplained symptoms now that doctors simply can't or won't address. I feel 10 years older. I keep plugging along and hope that I can keep my health going and feel better again and I think that's possible but it takes work. Finally, I care for my husband who has a rare form of cancer the doctors don't understand well. I am his advocate and if I weren't here, he'd have died long ago. Please try to find the strength to be your daughter's advocate and look for answers and support. I am sending hugs. This is a tough world to be sick in these days but with patience and care, hopefully she'll be getting better and back to a better quality of life.
@pumpernickel Hello there. My heart goes out to you. I remember how difficult it was for my mother when I began having chronic pain, symptoms, depression, anxiety and was in physical and emotional distress. She so badly wanted to help me and tried in her own way, like you are trying by reaching out on Connect.
As @colleenyoung mentions, I attended Mayo Clinic's Pain Rehab Center where my life was turned around to a new direction of pain management, emotional and behavioral management and chemical reduction/elimination. I was taught tools to succeed after the 3 week rehab program was over and finally had a plan.
My disabilities began at 43 and by 46 I was no longer able to work. It's life altering, but with effort, support, and a plan, things can get better. Quality of life can improve. There has to always be hope for a game plan of strategy and acceptance.
What can I do to help you help your daughter? What is the first piece of her puzzle that you think she needs help with?
Hi @pumperknickel, welcome. I'm so sorry to hear about the ongoing issues post sepsis that your daughter and your family are facing. I moved your post to this existing discussion:
- Sepsis: What's your experience recovering from sepsis https://connect.mayoclinic.org/discussion/sepsis/
I did this so you can connect with other members like @507 @psd0972 @tickleme1 @oregongirl @cindylb who have experienced sepsis themselves or their family member.
It must be so hard as a mom to see your daughter in such pain and dealing with unforgiving fatigue, COPD, depression and more.
I'd also like to introduce you to @rwinney who started this discussion that may give you a starting point to possible recovery:
- SMART Goals and Chronic Pain: What are your goals? https://connect.mayoclinic.org/discussion/smart-goals-and-chronic-pain-how-smart-are-you/