Jaw numbness: Anyone with Sjogren's experienced this?

Posted by robertjgoldenjr @robertjgoldenjr, Jun 29, 2022

I have possible Sjogren's. Has any one experienced under the lower jaw numbness with this disease? I would appreciate any feed back. Thank you.

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Colleen Young, Connect Director | @colleenyoung | Jun 29, 2022

Welcome @robertjgoldenjr. Sjogren's can cause numbness. I'm tagging fellow members like @athenalee @rexsan20 @cmtg @ninette @lilymol @dancing1 @no1likemo @jetsetter @anniemaggie @curlyq @aalbb and others who have experience with Sjogren's syndrome and may share this same symptom.

You may also wish to join this discussion:
- Sjogren’s Syndrome – Introduce yourself and meet others https://connect.mayoclinic.org/discussion/sjogrens/

Robert, Mayo Clinic's info list swollen salivary glands — particularly the set located behind your jaw - as a common symptom. Do you notice if your salivary glands are swollen? Might that be causing the sensation of numbness?

robertjgoldenjr | @robertjgoldenjr | Jun 29, 2022

In reply to @colleenyoung "Welcome @robertjgoldenjr. Sjogren's can cause numbness. I'm tagging fellow members like @athenalee @rexsan20 @cmtg @ninette @lilymol..." + (show)

I have not noticed if they are or not to be honest. How do you check that?

lilymol | @lilymol | Jun 30, 2022

Hello and welcome. I do have pain and swelling around, above, and below my jaw but no numbness.

robertjgoldenjr | @robertjgoldenjr | Jul 1, 2022

In reply to @lilymol "Hello and welcome. I do have pain and swelling around, above, and below my jaw but..." + (show)

Is it a dull ache or sharp pain. Is it constant or does it come and go?

lilymol | @lilymol | Jul 1, 2022

In reply to @robertjgoldenjr "Is it a dull ache or sharp pain. Is it constant or does it come and..." + (show)

Comes and goes…. Both sharp and a deep ache. Sometimes no pain at all. Almost always slightly swollen… just my new normal.

dancing1 | @dancing1 | Jul 1, 2022

I also have quite a bit of pain in my right side of my jaw that comes and does. Also inside my mouth on right side always feels painful and swollen.

dancing1 | @dancing1 | Jul 4, 2022

In reply to @dancing1 "I also have quite a bit of pain in my right side of my jaw that..." + (show)

My inside of my right side is also.

Becky, Volunteer Mentor | @becsbuddy | Jul 4, 2022

In reply to @lilymol "Comes and goes…. Both sharp and a deep ache. Sometimes no pain at all. Almost always..." + (show)

@lilymol It must be awful to have this almost constant pain in your jaw. Have you found anything that works to subdue it?
Have you seen your dentist for a good workup?

lilymol | @lilymol | Jul 4, 2022

The LDN and HCQ help with all my pain. As I mentioned it comes and goes. Yes I have my teeth cleaned every 3 months and see the dentist every other visit. I’m learning to just live with some of my symptoms. Life as I knew it before is gone. However I still have joy. My life just looks different now. Ty for the note:)

robertjgoldenjr | @robertjgoldenjr | Jul 5, 2022

I just finished more dental work and should be good for a while now. The numbness comes and goes through out the day. Some days none at all. Just saw my GP and she found nothing that would explain the issue. I thought maybe an x-ray would be in order but she did not order one. I see neurologist this Friday.

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