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Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

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regalrottweilers | @regalrottweilers | Jun 1, 2022
In reply to @aggie98 "I have horrible peripheral neuropathy pain from my toes to my knees. I can no longer..." + (show)
Profile picture for Aggie98 @aggie98

I have horrible peripheral neuropathy pain from my toes to my knees. I can no longer walk. A couple years ago my so-called pain doctor took all pain meds away from me and all his patients due to the “Opium Crisis.” Now what? All of us are being punished because of a few druggies who want to kill themselves. Many chronic pain sufferers have killed themselves due to the pain. Any suggestions for pain relief?

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Gabapentin helps me so much more than any opiates for pain control of my pancreatic nerves, abdominal adhesions and the neuropathy in my feet. I do have short term memory loss while on it but I would rather be forgetful than in excruciating pain.

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rivermaya34 | @rivermaya34 | Jun 1, 2022
In reply to @regalrottweilers "Gabapentin helps me so much more than any opiates for pain control of my pancreatic nerves,..." + (show)
Profile picture for regalrottweilers @regalrottweilers

Gabapentin helps me so much more than any opiates for pain control of my pancreatic nerves, abdominal adhesions and the neuropathy in my feet. I do have short term memory loss while on it but I would rather be forgetful than in excruciating pain.

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@regalrottweilers Amen to that!! I'm in the same boat, and I agree with you.

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nickwhite | @nickwhite | Jun 1, 2022

My name is NICKWHITE- I've had chronic lower for over a year I thought it was my bed until I got an MRI and found out that I suffer from L4/L -S1 bulging disc

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Mentor
Rachel, Volunteer Mentor | @rwinney | Jun 2, 2022
In reply to @nickwhite "My name is NICKWHITE- I've had chronic lower for over a year I thought it was..." + (show)
Profile picture for nickwhite @nickwhite

My name is NICKWHITE- I've had chronic lower for over a year I thought it was my bed until I got an MRI and found out that I suffer from L4/L -S1 bulging disc

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@nickwhite Hello Nick, welcome to Connect. I'm sorry to hear about your back trouble. I hope the procedure you recently had helps your pain and your bed can be of comfort again.

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nickwhite | @nickwhite | Jun 2, 2022
In reply to @rwinney "@nickwhite Hello Nick, welcome to Connect. I'm sorry to hear about your back trouble. I hope..." + (show)
Profile picture for Rachel, Volunteer Mentor @rwinney

@nickwhite Hello Nick, welcome to Connect. I'm sorry to hear about your back trouble. I hope the procedure you recently had helps your pain and your bed can be of comfort again.

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The ESI I had two days ago seems to be helping-we will see how long this last. Staying positive!!

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aquamarine4220 | @aquamarine4220 | Jul 4, 2022
In reply to @kimspr3 "I would like to introduce myself. I have 4 family members with 4 legs each. 2..." + (show)
Profile picture for kimspr3 @kimspr3

I would like to introduce myself. I have 4 family members with 4 legs each. 2 dogs, 2 rare Savannah cats, 2 sisters who were given to us at 7 weeks old. Does anyone have that breed? Dog rescues, male Mastiff/ Black Lab mix. He's a big boy. than Bella is a Mountain Cur. I mention them because they know when I need them. Their love helps me. 2008 I had a 'Failed Laminectomy," The more I researched the more I realized that those 2 words may mean, something else as in my case. removed was S-1 L-2 L-3 L-4 L-5 No fusion. I did not realize I was going down the road to a life of pain, severe nerve damage, scar tissue wrapped stuck to the nerves. As an uneducated Lay person in the medical field I trusted the Neurosurgeons, Pain Management drs. Ablations, 2 implanted stimulators. 1 had to be removed due to pain, battery put in the wrong place, frayed leads AND more Lamina removed. I asked him to remove the Stim he refused. 2nd stimulators. different dr. he found blood clots around the battery. As pain worsened, searching for answers. Fusion 2016. that failed. that same week I had a fractured vertebrae while in rehab? Emergency surgery. More medical failures after that. My condition is getting worse. Diagnosis, Adhesive Arachnoiditis, Most have never heard it because it may have another word for it as I mentioned it before. Cause, Neurosurgeons, Pain Management DRS. Positive note, I now have a Doctor that knows why I have this pain, and who caused it. And is doing everything he can to make me comfortable. He is also an Anesthesiologist who has expertise in chronic pain. I would like to help if I can. Thank You

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Gosh, your situation sounds just awful. I have 2 small dogs, down from 4, lost 2 last year 🙁
I am just so sorry to read all this stuff. I would be lost without them, like you and yours.

I guess (don't know your age, I am 79 yr old "white female"!!) but have come to agree that
people are just living too long these days. If I robbed a bank, the newspaper would describe me as a 79 yr old white female!!! Just sayin'

I have A-fib, V-fib, diabetes, terrible really bad neuropathy, severe arthritis, significant hip and omg lower back pain, but "there is nothing we can do", losing my hearing, brain slowing
down, had Covid in Jan, lost taste, brain cells, etc etc. so many of my friends have already moved UP there, kind of thinking how lovely that will be some day. (The list goes on and on)

I stopped trusting any of my doctors, all of whom "check out" 1000%, are well known in their fields. From my heart doctor who prescribed Diltiazem for my A-fib, (causing me to faint/pass out and break or crack multiple bones, my head, my back, my neck, every foot bone, every bone in both ankles, and spent several months a year in rehab for 5 continuous years, and she (doc) says I am wrong about the meds! So how can a doctor NOT know that and say (which she recently said, "well, if your heart...does something or other, you would lost consciousness, IT IS EASY TO GOOGLE!!!) the foot doctor who completely ruined my two toes, to the manicurist who damaged my bunion, to the dentist who put my veneers on so that the backs of my front teeth are like razors, and said it was not normal for my tongue to "mess" with my teeth, (when anyone with a brain knows that if you have a hole in a tooth, you cannot stop your tongue from going there. AND ON AND ON AND ON.

ANYWAY, my solution is "working" so far, and all it is, is that when I wake up every day, I consciously make a choice, and I choose JOY. And then I think of every single blessing and everything I am grateful for, and all that bad is still present and yucky, but I can be happy, love my doggies, send them light and meditate to heal them in certain ways, like my little guy needs some "testosterone" energy (because the larger one is a rough and tough girl) so I imagined white light streaming from my heart to his heart and said 'you are brave and strong, and you have courage and you are not afraid of Gracie (they are about a year + each) and on and on, and OMG I see the changes!!!!

AND BOY DO I EVER WANT TO HEAR ABOUT ANYTHING YOUR PERSON COMES UP WITH FOR YOUR PAIN.

I'll do the light thing for you, no pain, feeling great, cure found, all and everything.

Good luck, please let me know!!

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nedradenise | @nedradenise | Jul 4, 2022

Hello my name is Nedra, nice to meet you. I suffer from chronic pain. And would love some advice on how to cope.

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nedradenise | @nedradenise | Jul 4, 2022
In reply to @nedradenise "Hello my name is Nedra, nice to meet you. I suffer from chronic pain. And would..." + (show)
Profile picture for nedradenise @nedradenise

Hello my name is Nedra, nice to meet you. I suffer from chronic pain. And would love some advice on how to cope.

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I have a bulging disc in my neck and chronic back pain.

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mikayla | @mikaylar | Jul 5, 2022

Daily persistent headache and dizziness for 3 years every day/all day and migraine with aura. Prayers for all.

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jhghb | @jhbl | Jul 5, 2022

Hi I’m Jan. I began having neck pain with radiculopathy into my right hand in 2015. In 2017 I had the first of seven failed cervical spine surgeries. The last was 3/10/2022. I still have severe chronic neck pain, which has in turn caused depression and anxiety. I had to stop working (I was an RN) in 2017. I’m attempting to be managed by Fentanyl patches.

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