Cold feet due to neuropathy - need help

Hi @dwlowrance - I'm happy to hear that you have found something that helps. There is another discussion on Lions Mane you might find interesting - https://connect.mayoclinic.org/discussion/lions-mane/ where you can connect with @peggyn @marymaurer and @cokie63 who also have interest in Lions Mane.

Many thanks!! Going to try

If you can tolerate socks find the warmest wool socks and put on 2 pair.

Mine feet felt similarly to yours, but have progressed up ankle to thigh--with great toes cannot even feel nothing--not even a squeeze. The sharper and deeper pains got worse and cause muscle damage, feet tend to get blisters, contact dermatitis, and atrophy from little walking. Oral meds reduce the level of my 24/7, Lyrica, tramadol and occasional prednisone when feet are in trouble, but nothing stops the burning sensation except CBD (thc). For years, I got almost complete relief from burning by using a CBD balm/salve 3-4 times per day. As the disease progressed, that became less effective and I experimented CBD balms with certain essential oils--and finally produced my own combination with my own combination of carriers oils that absorb rapidly and essential oils that help further reduce pain are anti biotic, anti viral and anti fungal---all are very low concentrations. Other negative effect can be softening of the feet--susceptible to blister or dermatitis. At this stage it is a process of trial and error--meanwhile burning is never out of control. As. I work hard to get acceptable results without using stronger narcotics that steel my memory and the alter my moods more than these. Three doctors suggest medical marijuana adjunct to current meds. I do not want to get high so am researching that area and best delivery methods of the CBD--like oils...now. Buying a good walking cane is helping with balance. I think your use of CBD might give your years of relief. Good luck

Same for me. So I have been on a bit of a mission this week to solve this problem, because it has gotten so much worst. I am bed-ridden, so...
1-I have leg compression things, which I got on Amazon for about $45, which helps my circulation.
2- I have several soft electric blankets which I pile under and on my feet. I might turn on the top one, but nothing next to my skin, because it sometimes burns. (and actually right now, they feel kinda cold, but not disablingly so.
3- I bought dog warming pads, also Amzn, and I put them on top of my feet or on top of everything, I have two small dogs and sometimes one will go sit on top of all that and I love it!!
4- I take B12, sublingual. The usual pill is the Gabapentin, which does nothing at all, but is a terrible detox.

I had neuropathy before I was diabetic. Probably genetic, my mother had terrible trouble with her feet.

Good luck

I find that no one has a clue what it's like unless they also have it.
Maybe the worst part of aging for me and my cousin, our mothers
were sisters and both struggled with their feet. Don't think I ever
heard them call it that.

Welcome @aquamarine4220, You hit the nail on the head. No one has a clue unless they walk in your shoes so to speak. I think my idiopathic small fiber PN may be genetic but I really don't know. One of my sisters who has passed away was a diabetic and struggled with her feet and pain. At one point the doctors told her she may lose her feet due to diabetes. I just have numbness with mine which I guess is a blessing that I don't have pain. I shared my story along with other members in another discussion here - Member Neuropathy Journey Stories: What's Yours?: https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/.

I noticed in your previous post that you are on a mission to find solve this neuropathy problem. We've all been there and it really helps to learn as much as you can about your condition and become your own best advocate. Here are a few sites to hopefully help you on your journey:

-- Neuropathy Commons: https://neuropathycommons.org/index.php/neuropathy/neuropathy-overview
-- Foundation for Peripheral Neuropathy: https://www.foundationforpn.org/treatments/
-- NIH's National Center for Complementary and Integrative Health (NCCIH) which offers guidance about integrative health and how to evaluate it.: https://www.nccih.nih.gov/

Oh boy, is that true! I do not know of anyone else that has what I have and I've said to my wife many times that unless you have PN, you just don't know what it is like. Prior to PN, if you feel asleep in a chair and woke up.... sometimes, your foot would be "asleep".....I tell family members and friends, that's what many of us with PN have all the time. Both of my feet are always asleep with the feeling of tight socks. Best way for me to describe to other who are fortunate not to be impacted by PN. Ed

What about the part where it feels like ice picks are being driven through your foot or toe, and when you feel feel like someone is holding a torch to them, or maybe dry ice. The balance issues. We need a Neuropathy Card, like blind and deaf people have!!!
Good luck!

I can fully appreciate all of your comments regarding neuropathy. No cause identified for mine! The numbness is so weird. I find it hard to sleep on my left side now. Numb but with pain down leg to foot! Yikes! I exercise in pool, take Tramadol sometimes and rub my feet with different creams. Menthol, frankincense and myrrh, and aromatherapy creams. Going to check into CBD at next appointment. Trying chair yoga this week. I just keep searching. Had a lot of health issues over years. One was breast cancer and had chemo - the red devil. I survived that and I am determined to beat and/or work with this too. Life is just to precious! Turn 70 in November! 😊

Hang in there! Pam