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Need Help..peripheral neuropathy, chronic widespread pain and weakness

Posted by sues3gems @sues3gems, Aug 31, 2011

Hello. I'm hoping to obtain help from either a Mayo Clinic patient or Mayo Clinic Staff. I am 47 years old, female, married. For the past 10 years, I've been suffering with the diseases/symptoms that I have listed on my profile. However, the ones that are the most painful and have left me disabled are the peripheral neuropathy (nerve pain in both feet,legs,hands,arms), chronic widespread pain and weakness. fibromylagia and chronic fatigue, . I've been from doctor to doctor, with a host of med;s and the latest is a alternative doctor who has taken me off of gluten and dairy. It's been 3 months abstained from gluten and dairy but to no avail... my nerve pain and chronic fatigue and everything else remains! She tells me it takes about a year for me to abstain from gluten and dairy for my body to begin to heal and my symptoms to to heal therefore, my pain can go away. Is this true? I'm now considering a trip to Mayo Clinic because I don't know what to believe anymore..I'm desperate to find out why my pain continues. My med's are: 600 mg. Neurontin 3 x day, Fentanyl Patch 75 mcg., Topamax 150 mg., Plaquenil 100 mg, Armor thyroid 60 mcg., Herbal Vitamins for Andrenal Glands

Interested in more discussions like this? Go to the Neuropathy Support Group.

NJ Ed | @njed | Jul 3, 2022
In reply to @duquer "Hello Ed, in answer to your question each treatment lasts between 20 and 35 minutes. I..." + (show)
@duquer

Hello Ed, in answer to your question each treatment lasts between 20 and 35 minutes. I went through approximately 40 treatments over a year.

I have included A link to my story which is posted on this website. If you have any more questions afterward please let me know
https://connect.mayoclinic.org/comment/645606/


Best wishes

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Hi Ralph,
Wow! I did read your incredible story and I am glad you found a treatment that is helping you. Had you not been in the health care profession, I am not so sure you would have made it. Your story is encouraging to millions of us with peripheral neuropathy. I have tried various meds and no improvement, the PN has increased quite a lot over past four years. It seems to hold at a level for a while, then gets worse, holds again, then worse again, etc. I plan to discuss your treatment plan with my physician. Thanks for sharing your experience.

REPLY
roslyn | @roslyn | Jul 3, 2022
In reply to @duquer "I just wanted to share with you, that I had some of the same symptoms. My..." + (show)
@duquer

I just wanted to share with you, that I had some of the same symptoms. My diagnosis is severe axonal sensorimotor polyneuropathy.It took me six years to find a treatment that actually works! If you would like to know more about the RST Sanexas treatment, I would gladly send you my story. Let me know. Wish you the best!

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Tried sanexas. Didn’t work for me. Thanks.

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fala | @fala | Jul 3, 2022

Hi,
I have shared what works for me a couple of times in different sites. When a person says they have SFN, it's like saying, "I'm sick, which, of course can mean many different ailments. This rotten disease is so different for everyone that it falls back on trial and error most of the time to get any relief. I suffered and tried many different remedies, and finally landed on the correct type/dose of CBD for me. Now my pain is tolerable. Perhaps you have access in your State? Try it if you can. Best of luck to you!

REPLY
Beth Wiseman | @bethwiseman | Jul 3, 2022
In reply to @duquer "I just wanted to share with you, that I had some of the same symptoms. My..." + (show)
@duquer

I just wanted to share with you, that I had some of the same symptoms. My diagnosis is severe axonal sensorimotor polyneuropathy.It took me six years to find a treatment that actually works! If you would like to know more about the RST Sanexas treatment, I would gladly send you my story. Let me know. Wish you the best!

Jump to this post

I would like to know

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