Anyone have Laryngeal Sensory Neuropathy?

Interesting. I think I get this sometimes. I have Wartenbergs Migratory Sensory Neuropathy, so can get any SN/SFN symptoms anywhere without notice for however long it feels like taking! I found gabapentin awful, as it screwed up my speech centres. I was on opiates and other painkillers and amitriptyline and citalopram, but have now almost cut out the opiates and paracetamol with medical cannabis. I have found 5 elements style acupuncture extremely good for acute attacks though, and can feel a a massive reduction (50-80% by area) the next day after a treatment. I sometimes literally draw lines round the affected areas to make my therapists life easier 🤣

Welcome @nitsirk, It must be really difficult having such a rare form of neuropathy. For others who might not know what it is...

"What is Wartenberg's migratory sensory neuropathy?
Migrant sensory neuropathy (Wartenberg's migrant sensory neuritis) is characterized by sudden numbness in the distribution of one or multiple cutaneous nerves. The limited number of published clinical studies seems to suggest that it is a rare disorder. Most studies included few patients and were retrospective."
---Wartenberg’s migrant sensory neuritis: a prospective follow-up study: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2910306/

It's good that you found something that helps provide relief for acute attacks. Have you done any research on the condition?

But yes, I’ve been monitoring and researching this and my other weird disabilities since about 2005 with daily Google alerts of new stuff. When you’ve seen people at the highest level in the country and left them bemused, you’ve got to be your own expert! That and the NHS and a good GP and life is good, if limited mobility wise.

Interesting. I think I get this sometimes. I have Wartenbergs Migratory Sensory Neuropathy, so can get any SN/SFN symptoms anywhere without notice for however long it feels like taking! I found gabapentin awful, as it screwed up my speech centres. I was on opiates and other painkillers and amitriptyline and citalopram, but have now almost cut out the opiates and paracetamol with medical cannabis. I have found 5 elements style acupuncture extremely good for acute attacks though, and can feel a a massive reduction (50-80% by area) the next day after a treatment. I sometimes literally draw lines round the affected areas to make my therapists life easier 🤣

Have you tried searching using Google Scholar? -- https://scholar.google.com/
I like that you can sort the search results by year to see the most current links.

wow, I’ve never heard of that . Hope you find peace with treatment ! I think natural treatment like cannibas is a good idea .. I’m not a fan of script drugs if at all possible for sure . Hope that helps you

I have not been diagnosed with LSN but one of the ENT docs suggested this possibly .. after negative work ups on all gastroenterologist, speech therapy , endoscopy , pulmonary , ct scan etc.. started 6 years ago after an ear infection I had this phlegm cough and clearing my throat daily and constantly . It’s like 15 min wet cough with phlem attacks I’m 60 and in great health other than this . Tried every ent post nasal drip treatments , rinses decongestants , steroid sprays .. nothing has helped me . Trying to pin point triggers doesn’t work like ya read about either . there is no rhyme or reason it seems it’s a mystery to get the right diagnoses . It does as well become very depressing and hard not to be running to new docs as like the gastroenterologist I saw acted like there isn’t any proof of reflux to be causing this so just take flonase and ya be good .. that’s hard when ya feel like your loosing your mind and no one gets it 😢 especially when someone tells you it’s in your head .

I hav had the same problem as you for a time and i find vitamin c very good for this complaint 2000 mg a day .
Also what is great is organic Rosehip powder organic . Stay away from gluten and cows milk change your air conditioner filters every 3 months. It works .