With MAC, do you use tap water to brush your teeth?

Posted by ansley @ansley, Jun 5, 2022

I have MAC lung disease. Is it ok to use tap water when brushing teeth?

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@becleartoday

Hi Lyle,
You’re not paranoid, you’re just trying to take precautions. I do as well. According to Dr. Joseph Falkinham, who runs in NTM lab at Virginia tech, distilled water is not sterile. Although the water itself is sterile, the equipment to remove the metals is not.

When showering, I use a showerhead with large holes so very little mist is created. And I take short showers. Also, I swap out my showerhead every six weeks or so with an under $20 one from Amazon. I had thought to perhaps buy six of them and rotate them, but Dr. Falkinham said that in a study they did in his lab, after seven weeks although NTM was desiccated on the culture plate, about half of the bacteria were still viable. So, instead of rotating showerheads, I just replace them. And then donate them to Habitat for Humanity.

It’s so interesting to read how we all are trying to protect ourselves in different ways. Best, Linda Esposito

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Good information, thank you.i do my best to stay out of the shower. I soak my showerhead in vinegar once a month hoping that will help!

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@bluesplashgirl

We Have RO with special filters and I drink from a LifeStraw bottle just to reduce the risk. Also, I try to swish with bottled water but don't always.

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I also use a lifestraw. 🙂

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@macheese

Good information, thank you.i do my best to stay out of the shower. I soak my showerhead in vinegar once a month hoping that will help!

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Hello, new to this page. I just installed AquaCare shower head and little to no mist. I live it. Still having a hard time with shorter showers....

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@helenrivera

Hello, new to this page. I just installed AquaCare shower head and little to no mist. I live it. Still having a hard time with shorter showers....

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Hi Helen -
I guess the answer to a lot of questions with MAC is "It depends."
My home is highly unlikely to contain NTM in the water according to Dr Falkingham because we are plagued by pink slime mold. According to his research at the University of Virginia, the two cannot coexist in your pipes. As a result, I am probably less cautious than many people - we use .2 micron filtered drinking water for safety, keep our hot water heater at 138F to prevent growth of NTM, and use a rainfall (big drop) showerhead. Otherwise, my water precautions are minimal. I do use tap water for toothbrushing at home. But when we travel, we carry bottled spring water for drinking, toothbrushing, taking meds, etc.
This has worked for me for 4 years - 1 1/2 on the Big 3, 2 1/2 with airway clearance and nebulizing.
I'll answer your other question about saline in the other discussion.
Do you have any other questions about living with MAC?
Sue

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@sueinmn

Hi Helen -
I guess the answer to a lot of questions with MAC is "It depends."
My home is highly unlikely to contain NTM in the water according to Dr Falkingham because we are plagued by pink slime mold. According to his research at the University of Virginia, the two cannot coexist in your pipes. As a result, I am probably less cautious than many people - we use .2 micron filtered drinking water for safety, keep our hot water heater at 138F to prevent growth of NTM, and use a rainfall (big drop) showerhead. Otherwise, my water precautions are minimal. I do use tap water for toothbrushing at home. But when we travel, we carry bottled spring water for drinking, toothbrushing, taking meds, etc.
This has worked for me for 4 years - 1 1/2 on the Big 3, 2 1/2 with airway clearance and nebulizing.
I'll answer your other question about saline in the other discussion.
Do you have any other questions about living with MAC?
Sue

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Thanks you for your response. I guess I am scared as MAC is new to me. I started antibiotic therapy about 2weeks ago and this week I am to start the 4th with a nebulizer. Its a bit overwhelming....I guess my question its in regards to pain. I have been experiencing pain in my lower back and upper legs. Its not daily and at times comes in sudden. I will take motrin. Is this usual. I have other side effects but so far nothing I can't handle. If you or anyone has side effects from the mac meds what can I expect as far as how long they last?

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