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Lewy Body Dementia - What are your questions?

Apr 13, 2021 | Jodi Melius | @jodimelius | Comments (45)

During our upcoming Lewy Body Dementia Knowledge & Support Summit we will be hearing from leading experts on LBD!

What are your questions? Do you want to learn more about sleep, medications, movement? Or do you have general questions about Lewy Body Dementia?

What does it mean to live well with LBD, and how do caregivers and families find support and joy in this journey?

Please comment with questions!  We hope to see you at our upcoming LBD Summit on May 3rd!

 

3 Reactions

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caregiverlbd2021 | @caregiverlbd2021 | Jun 25, 2022
In reply to @tracyo "I tried searching for this podcast and cannot find it. Does it still exist?" + (show)
@tracyo

I tried searching for this podcast and cannot find it. Does it still exist?

Jump to this post

Yes, its pretty new. Started during the pandemic. I listen on iHeartradio. I came across it when searching for dementia poscasts. Make sure when you search, you search podcasts. Sometimes I forget to click that and it looks for music lol

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caregiverlbd2021 | @caregiverlbd2021 | Jun 25, 2022
In reply to @carolee888 "I have questions about Vascular Dementia, is there a place where I can ask about that?" + (show)
@carolee888

I have questions about Vascular Dementia, is there a place where I can ask about that?

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I couldn’t find any podcasts on iHeart, but I searched Vascular Dementia on YouTube and found several videos from physicians, medical centers, people living with it, etc. Looks like a good spot to find answers.

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1 reply
carolannp | @carolannp | Jun 26, 2022
In reply to @caregiverlbd2021 "I know this is an old post but I hope this helps, all of these questions..." + (show)
@caregiverlbd2021

I know this is an old post but I hope this helps, all of these questions have been answered for me by listening to the new podcast called Lewy Body Rollercoaster. Its hosted by a man who has Lewy Body and Linda, who’s husband has LBD. They speak of their experiences, interviews with other families, they have online support groups, and medical professionals and authors have also appeared on episodes. Its a fantastic podcast, I’ve learned SO much.

Jump to this post

I cannot find this. is it still going?

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1 reply
carolee888 | @carolee888 | Jun 26, 2022
In reply to @caregiverlbd2021 "I couldn’t find any podcasts on iHeart, but I searched Vascular Dementia on YouTube and found..." + (show)
@caregiverlbd2021

I couldn’t find any podcasts on iHeart, but I searched Vascular Dementia on YouTube and found several videos from physicians, medical centers, people living with it, etc. Looks like a good spot to find answers.

Jump to this post

Thank you, I searched You-Tube and found videos that too, I love you-tube. My experience is that if you are interested in a subject, they have at least one video on it.

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Nick Rethemeier | @nrethemeier | Jun 29, 2022
In reply to @carolannp "I cannot find this. is it still going?" + (show)
@carolannp

I cannot find this. is it still going?

Jump to this post

@carolannp, you can access Lewy Body Roller Coaster at the link below:
https://lewybodyrollercoasterpodcast.buzzsprout.com/

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