Struggling with anxiety while undergoing diagnostic testing

Posted by flow65 @flow65, Apr 17, 2022

I’m not sure if I have Dercum’s disease or not. Also not sure if it’s an autoimmune disease. I recently had an ultrasound done on my upper thighs. I felt small bumps under the skin. My dr felt some and had the ultrasound ordered. Some are tender. A couple of them painful. Not sure how many I have. I had to show the technician some of them. Results came back as lipomas. Supposedly non cancerous. My husband and I researched it. It could be a rare disease called Dercums. I also have GERD, anxiety, stress and now possibly this. Has anyone been dealing with this disease? Thank you

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@flow65

I seem to have medicine sensitivity. Everytime I try a new medicine especially for anxiety I have trouble. Back in 2020 when pandemic had started I stopped taking Celexa. My psychiatrist wasn’t seeing patients for awhile. It may have been laziness to stop it. It wasn’t all at once. So maybe no withdrawal effects. Then he started seeing patients. I went back to him. I tried a couple of different meds and had trouble. Went back on celexa at 20 mg got really sick. Was on different meds. Still trouble. Then was on Pristiq didn’t work. Weaned off but was too quick I believe under his direction. Then on a beta blocker. Off of that one. Then he tried to convince me going on a low dose of Seroquel. He even said I could stop it without any trouble. My husband called the pharmacist on Saturday and she said it can cause stomach upset and loss of appetite. I’m very nauseous. I stopped it on Saturday evening. I’ve been nauseous and loss of appetite for awhile. I lost weight. Had a scope and colonoscopy recently. Everything is fine there. The surgeon thinks it’s the Seroquel. I see a therapist. I’m not trusting pharmacists, drs etc. I would like to know if it’s a possibility of medications or anxiety or both. If it is medicine, do you know how I could check that out? Thank you. Flo

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@flow65. Hi, Flo Sorry you’re still having all these problems. You stated “i would like to know if it’s a possibility of medications or anxiety or both.” I’m not sure what you meant by this. WHAT could be a possibility of medications or anxiety?

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@becsbuddy

@flow65. Hi, Flo Sorry you’re still having all these problems. You stated “i would like to know if it’s a possibility of medications or anxiety or both.” I’m not sure what you meant by this. WHAT could be a possibility of medications or anxiety?

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Sorry I’ve had nausea for awhile. I’m just wondering if it’s from meds and or anxiety. No one can give me a definitive answer. Thank you. Flo

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@flow65

Sorry I’ve had nausea for awhile. I’m just wondering if it’s from meds and or anxiety. No one can give me a definitive answer. Thank you. Flo

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@flow65 OK, now I understand! You can look up your drugs online or I have an app on my phone called Drugs.com. I really like it because it explains everything i need to know about my medications.It may be easiest for you to make a list of your medications and dosages and then see if you can get an appointment with a pharmacist at the local pharmacy. They are the most knowledgeable of medications. And take notes!
Is that something you could do?

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@becsbuddy

@flow65 OK, now I understand! You can look up your drugs online or I have an app on my phone called Drugs.com. I really like it because it explains everything i need to know about my medications.It may be easiest for you to make a list of your medications and dosages and then see if you can get an appointment with a pharmacist at the local pharmacy. They are the most knowledgeable of medications. And take notes!
Is that something you could do?

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Unfortunately, the pharmacists we have in the area have different opinions. One will give us their opinion and then another will have a different opinion. One says all medications have side effects. This is so frustrating. Plus, they will tell us if you have problems contact your dr. Thank you for contacting me. Flo

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@flow65

Unfortunately, the pharmacists we have in the area have different opinions. One will give us their opinion and then another will have a different opinion. One says all medications have side effects. This is so frustrating. Plus, they will tell us if you have problems contact your dr. Thank you for contacting me. Flo

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@flow65 Yes, I agree that most all medications have side effects, but that shouldn’t stop you from asking about the nausea and it’s relation to your medications. Pharmacists can have good advice on the best ways to take medications that will help avoid problems, like nausea.
Will you try making the appointment?

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@flow65 and @becsbuddy, I just wanted to let you know that I revised the title of this discussion since it is not focused on Dercum’s disease.

@flow65, you are certainly not alone in feeling heightened anxiety when dealing with diagnostic testing. Technicians conducting the tests often have helpful suggestions to make you more comfortable. It sounds like your anxiety is something you are working hard to manage.

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@becsbuddy

@flow65 Yes, I agree that most all medications have side effects, but that shouldn’t stop you from asking about the nausea and it’s relation to your medications. Pharmacists can have good advice on the best ways to take medications that will help avoid problems, like nausea.
Will you try making the appointment?

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Thank you. We will try.

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@flow65

It’s scheduled for Monday. I use to be strong. My mind has been somewhat shattered ever since pandemic started. Plus other things. I’ll try to be positive. Thank you for the encouraging words.
Florence

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I don’t know anyone that has not suffered during this crazy pandemic!
I was diagnosed with two autoimmune do’s and put on two meds that are “ challenging at best”. My anxiety from the diagnosis and the meds was through the roof and then I remembered my Rheumatologist stating that Accupuncture can be helpful in the treatment of autoimmune!
Let me tell you I don’t know yet about the impact it is having for the AntiSynthetase and Sjogrens BUT my anxiety is gone!!!
I feel so good AND my energy is through the roof!

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@cantek

I don’t know anyone that has not suffered during this crazy pandemic!
I was diagnosed with two autoimmune do’s and put on two meds that are “ challenging at best”. My anxiety from the diagnosis and the meds was through the roof and then I remembered my Rheumatologist stating that Accupuncture can be helpful in the treatment of autoimmune!
Let me tell you I don’t know yet about the impact it is having for the AntiSynthetase and Sjogrens BUT my anxiety is gone!!!
I feel so good AND my energy is through the roof!

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Thich Naht Hahn has written some fantastic books about mindfulness. In my experience, that has been the most effective approach to reducing anxiety. Mindfulness helps me stay focused on the present moment instead of anticipating what MIGHT happen in the future. Maybe that approach would help you too. There are no side effects. Your local library can find the book to loan you.

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...sorry to jump in. I have had and still have side effects from meds... but also even vitamins, B, D. Also have anxiety so yes its difficult to know which is which, but I feel it's a combination. My spouse and I take Imodium but both from different pharmacies and made by different manufactures, curious I checked both makers of the pills/ingredients and each one not only had the main drug (loperamide) but a list of "other ingredients." So I wonder, as most other"pills" have ingredients to actually mix with the main med., for instance, for colour, stability of ingredients, what the "shell" of the pill is coated with etc. etc. these can, or can they, cause side effects including nausea? Even checking these two I was so confused and most meds if you check have other "ingredients"... it goes on and on. Also annoys me a bit when nice pharmacist says, oh that list of side effects is just for insurance purposes, maybe only one person had that side effect etc. etc. as I am often "that one." When we get a prescription for a specific medication in a pill, we are also ingesting many other additives to those pills .... but to me its a maze. Just a suggestion maybe same "drug", different manufacturer" Does this make sense?. J.

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