My Experience on Evenity for Treating Osteoporosis

I shatterd my wrist in late 2019 at age 64, so surgery and metal plates. No discussion of bone mass, then came Covid so no chance to update scans until January 2022. Now my lumbar spine is above 4 so my new rheumatologist is aghast! She prescribed Evenity but I cannot get through the insurance gauntlet. She also mentioned Forteo but that may be my next attempt at getting some treatment.

I shatterd my wrist in late 2019 at age 64, so surgery and metal plates. No discussion of bone mass, then came Covid so no chance to update scans until January 2022. Now my lumbar spine is above 4 so my new rheumatologist is aghast! She prescribed Evenity but I cannot get through the insurance gauntlet. She also mentioned Forteo but that may be my next attempt at getting some treatment.

As I understand it, Evenity is covered under Medicare if you can wait till 65. ALSO: if you go to the Evenity website you can sign up for a copay that will reduce cost to $25!! Then you only need to cover the injection visit…I did this when my then insurance company was going to charge me $400/month. I did a year of Evenity and just had my Reclast infusion. My bone mass in a critical area went up 12%!! Think I’m technically osteopenia-so yeah?

My impression is that there is no stopping Prolia for a few weeks. (And I could be wrong .) At least without immediately going on a relay drug to try to prevent the bone loss triggered by discontinuing Prolia. For what it's worth, my endocrinologist has patients who were put on Prolia elsewhere and want to get off of it, and he begins the relay drug while still in Prolia if the drug is a bisphosphonate to try to alleviate the issues from quitting Prolia. And he does not prescribe Prolia himself any more.

Amgen has a black box warning on the insert (which most patients do not see unless you open the package and read it before handing over to the nurse/doctor giving the injection) advising not to stop taking Prolia cold turkey. I have read it. On Prolia for 4 yrs and would have to transition off on to Reclast. 100% you cannot just quit taking Prolia without backup plan or at high risk for fracturing.

Thanks for noting that. I agree that most people don't read the package insert. I swear they're printed in increasingly-tiny font. Or my eyes are aging along? LOLA

My Doctor put me on the Prolia shot without filling me in on all the side effects .
I didn’t do any research on the shot or I would have never taken it . I just went in and got the shot because my doctor told me that’s what I needed because I had severe osteoporosis. It was done in Doctors office . When my insurance stopped paying for it after 3 years of being on it I had to stop taking it . After 7 months of being off Prolia I have had 3 fractures. Wish I had done some research on it and just not took my Doctors advice