Burning Feet syndrome

Posted by ndovu @ndovu, Mar 17, 2012

Hi everyone! Am 40yrs man in Africa - Country. Kenya. In 1993 aged 22 and in college, I developed burning feet. So hot have been my feet that I've not worn closed shoes all those yrs
All tests done over the yrs -,including blood sugar, pressure, vitamin test, nerve endings test etc. All have been negative. I'm generally healthy, with no major problem. I need anyone who has had such a problem and got help to help.

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Well I am at the max of 2700mg a day and I still hurt.. I drink 5 hour energies to over come the be tired all the time....

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@pfbacon

I take Lyrica at night, 225 mg, and gabapentin in the day, 1200 mg twice a day. Gaba doesn't make me sleepy but lyrica does. I started out with 1 small gaba a day, that relieved the 'needle-sticks' and burning for a year, then my nervous system began dying at a faster and faster pace - the pain was very bad, more like red hot swords and fireworks bursting up through my feet about 8 times per second. My neurologist ramped up the doses gradually to relieve the pain, then referred me to a pain specialist who has upped the dose several times since. Neuropathy is in my arms now, it feels like hives plus wasps stinging for hours. We are discussing other remedies. I don't want anything that makes me sleepy. I've tried a few narcotics, all of them, except Tramadol, made me sleepy. The 'holistic' remedies in health stores didn't help at all. CBD cream didn't help either. Patches with Lidocaine numb it for awhile. When my condition breaks through the Lyrica and Gaba I'm taking now, I might try the lidocaine infusion. Peggy

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Hi Peggy
I recommend giving it a try. I'm sitting in the hospital receiving it as we speak. I have a love/hate relationship with it. Been 3 and a half months and I'm at 2nd to highest dose for my weight. Boycotted it last week because it was taxing on me and I needed a break mentally. Needed to understand where my neuropathy was months later and it's progression. It was an eye opener. Although I still have pain with the infusions, some days debilitating, I now realize the pain that lurks in every nook and cranny of my body returned with a vengeance. There you have the love/hate definition. If you are willing to get past the possible side effects and experimentation of dose and possible side effects then go for it. It's a safe procedure as long as your heart is healthy and your free from seizures.
Willing to answer any questions you may have.
Rachel

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@tigreyes2004

Oh my God. All these stories I am hearing. I just started on the Gabapentin & Cymbalta but I'm not going to take any more than I am now & that is 300 mg. I guess I will live in pain. I heard horror stories about Lyrica so I won't take that. I wish everyone the best. Genie

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I'm so sorry that my reply scared you! I am grateful for the Lyrica and gabapentin - they don't cause pain, and they aren't pain killers either, my doctor said that they are anti-seizure medications - they 'quiet the nervous system so that it stops sending out false pain messages'. When my feet and legs feel like they are on fire but I look at them and see that there is no fire anywhere around, it's my nervous system sending a false pain message. Same with the stinging - I feel stinging and stinging but there is nothing on my arm stinging me. Peggy

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@rwinney

Hi Peggy
I recommend giving it a try. I'm sitting in the hospital receiving it as we speak. I have a love/hate relationship with it. Been 3 and a half months and I'm at 2nd to highest dose for my weight. Boycotted it last week because it was taxing on me and I needed a break mentally. Needed to understand where my neuropathy was months later and it's progression. It was an eye opener. Although I still have pain with the infusions, some days debilitating, I now realize the pain that lurks in every nook and cranny of my body returned with a vengeance. There you have the love/hate definition. If you are willing to get past the possible side effects and experimentation of dose and possible side effects then go for it. It's a safe procedure as long as your heart is healthy and your free from seizures.
Willing to answer any questions you may have.
Rachel

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Thank you, Rachel -- what possible side effects? Peggy

REPLY
@tigreyes2004

Oh my God. All these stories I am hearing. I just started on the Gabapentin & Cymbalta but I'm not going to take any more than I am now & that is 300 mg. I guess I will live in pain. I heard horror stories about Lyrica so I won't take that. I wish everyone the best. Genie

Jump to this post

For what it's worth...I take Lyrica Controlled Release at night 165mg and I'm fine. I believe everyone has to acclimate to meds to some degree. As long as it's not detrimental to your health, I wouldn't rule it out. But, It's a personal choice and experience
Rachel

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@pfbacon

I take Lyrica at night, 225 mg, and gabapentin in the day, 1200 mg twice a day. Gaba doesn't make me sleepy but lyrica does. I started out with 1 small gaba a day, that relieved the 'needle-sticks' and burning for a year, then my nervous system began dying at a faster and faster pace - the pain was very bad, more like red hot swords and fireworks bursting up through my feet about 8 times per second. My neurologist ramped up the doses gradually to relieve the pain, then referred me to a pain specialist who has upped the dose several times since. Neuropathy is in my arms now, it feels like hives plus wasps stinging for hours. We are discussing other remedies. I don't want anything that makes me sleepy. I've tried a few narcotics, all of them, except Tramadol, made me sleepy. The 'holistic' remedies in health stores didn't help at all. CBD cream didn't help either. Patches with Lidocaine numb it for awhile. When my condition breaks through the Lyrica and Gaba I'm taking now, I might try the lidocaine infusion. Peggy

Jump to this post

Oh my :'( I am so sorry you are experiencing that! Realistically though - it may be in my future too, so best to learn about it now rather than wander around seeking answers like I have been for the past 10 years. I like that you are taking 2 different meds - one for day and one for night. It helps me to understand that a mix and match approach IS something that is possible.

I realize 100 mg is a very small dose and it's very early, but so far I've had zero side effects. I'm hoping my doctor's approach to very slowly upping the dosage keeps it that way.

REPLY
@pfbacon

Thank you, Rachel -- what possible side effects? Peggy

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Mine have been mild dizziness, only during infusion. Earlier doses gave me rosey cheeks and warm spells but never a fever over 100.2, has since dissipated. Currently, because of higher doses, a metallic taste in my mouth which comes and goes during infusion, along with mild numbness in side of face or lips which also comes and goes. Slight throat numbness. Due to these reactions thry slowed my drip from 4 hours to 4 and a half. Cant slow any more.

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@rwinney

Mine have been mild dizziness, only during infusion. Earlier doses gave me rosey cheeks and warm spells but never a fever over 100.2, has since dissipated. Currently, because of higher doses, a metallic taste in my mouth which comes and goes during infusion, along with mild numbness in side of face or lips which also comes and goes. Slight throat numbness. Due to these reactions thry slowed my drip from 4 hours to 4 and a half. Cant slow any more.

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Its very confusing because I still need to take Hydro which I thought would be reduced. But because I'm full of neuropathy it's combined approach to pain management.

REPLY
@rwinney

Mine have been mild dizziness, only during infusion. Earlier doses gave me rosey cheeks and warm spells but never a fever over 100.2, has since dissipated. Currently, because of higher doses, a metallic taste in my mouth which comes and goes during infusion, along with mild numbness in side of face or lips which also comes and goes. Slight throat numbness. Due to these reactions thry slowed my drip from 4 hours to 4 and a half. Cant slow any more.

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I see ... thank you, Rachel. Peggy

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I took Lyrica CR but my insurance company quit paying for it so I went back to several capsules. Peggy

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