@mamafluh this is a great discussion to gather tips from others dealing with longhaul COVID. Why don't you get the conversation started?
What symptoms do you have? What ones do you find the hardest to describe? What words or metaphors help you to communicate your symptoms to your doctor and feel understood?
Absolute fatigue
Unable to stand while brushing teeth
Heaviness in my chest
Shakiness after making a sandwich
Inability to lift arms to hang up clothes
No energy to even speak
Note: I tested positive on home test on April 19, 2021. I spent most of April going from primary to cardiologist to Pulminologist trying to find reason for my exhaustion. I had swollen ankles and numbness in my calves. Cardiologist ran a CT scan to check for infection and discovered GGO (ground-glass opacity). He placed me on prednisone 4/14/22.
Since then, I have continued having the fatigue and heart affects.
I found that describing my symptoms to my PCP and Cardiologist all I got was the deer in the headlights look. After 6 months of wondering why I felt this way I found a Naturopathic Doctor that understood and knew what to do about it. I'm taking a lot of supplements and she changed my diet a bit and she gave me some hints on relaxing. One of the best things that make me feel better is every morning I sit in the sunshine for 15 minutes and let it shine on my face and arms. During this time I pray to God with a thankful heart.
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Absolute fatigue
Unable to stand while brushing teeth
Heaviness in my chest
Shakiness after making a sandwich
Inability to lift arms to hang up clothes
No energy to even speak
Note: I tested positive on home test on April 19, 2021. I spent most of April going from primary to cardiologist to Pulminologist trying to find reason for my exhaustion. I had swollen ankles and numbness in my calves. Cardiologist ran a CT scan to check for infection and discovered GGO (ground-glass opacity). He placed me on prednisone 4/14/22.
Since then, I have continued having the fatigue and heart affects.
I found that describing my symptoms to my PCP and Cardiologist all I got was the deer in the headlights look. After 6 months of wondering why I felt this way I found a Naturopathic Doctor that understood and knew what to do about it. I'm taking a lot of supplements and she changed my diet a bit and she gave me some hints on relaxing. One of the best things that make me feel better is every morning I sit in the sunshine for 15 minutes and let it shine on my face and arms. During this time I pray to God with a thankful heart.
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