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Pancreas Divisum: Does anyone else have this and know they have it?
Digestive Health | Last Active: Mar 11, 2023 | Replies (20)Comment receiving replies
Yes the diet is everything for me. My pancreas doesn’t drain properly, so fat, etc backs up and the pancreas produces more enzymes which inflame it. I try to avoid fats and sugars as much as possible, but my GI
Doctor said tha was not realistic, but everything in moderation. Ever since the last attack it makes me nauseous if I even think about eating fried food.
When I stopped the sulfasalazine,
My rheumatologist started me on hydroxichloroquine two a day. I also started seeing an endocrinologist who discovered I don’t produce a sufficient amount of cortisone so I take a 5 mg prednisone daily. The arthritis always hurts but I can live with it.
Replies to "Yes the diet is everything for me. My pancreas doesn’t drain properly, so fat, etc backs..."
I have had pancreatitis my whole life. I was first hospitalized at 13 years of age with divisum. I have spent more than 2 years (in total) in the hospital from pancreatitis divisum. Once I started (finally) taking creon, very religiously, the madness finally stopped. I do eat very healthy, but I eat plenty of good fats, like olive oil and avocado. I def stay away from anything fried, saturated fat. My veins are totally shot from all of the demerol and phenegran I have had. They can hardly get an IV in now and if they do, it doesn't last 24 hours. We are a select few that most of the world doesn't understand. My dad died of pancreatic cancer. So it is a little scary.
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If you are seeing a rheumatologist for rheumatoid arthritis, you might be interested in a discussion group on Connect about that problem. Here is the link, https://connect.mayoclinic.org/discussion/rheumatoid-arthritis-ra-introduce-yourself-and-meet-others/.
It sounds as if you have a good medical team on your side. Having an endocrinologist as well as a rheumatologist is a great combination given the health issues you face.
Take a look at the discussion on RA and feel free to post there as well.