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Epstein Barr Nuclear AG AB IGG result of over 600

Infectious Diseases | Last Active: Oct 29 10:35am | Replies (146)
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@texgarden

Thanks so much for your candor. Yes, for a long time this has been an issue. I'm an avid gardener, and that is my primary exercise...15-25k steps over a weekend. In the past two years I have figured out that for every one day (8-12 hours) heavy gardening, it takes three days to recover, sometimes even missing work. I am very, very sensitive to heat, and the longer this goes on, the less time I can do my regular activity without near collapse. The strategy of just "driving to the finish" just doesn't work anymore.

One thing I am starting g to wonder is whether I am referring to the correct "high number" in the EBV tests. Unfortunately, I haven't been able to reach my doctor to clarify. I also have some abnormal liver and kidney numbers from the same draw as my recent EBV.

When you first started this process did you see a rheumatologist?

I am thinking that self-care may start with asking my physician for a referral to a rheumatologist. I've had these symptoms for such a long time, and it was only learning my EBV antibodies are so high (750) that made me start to see that maybe these symptoms have a cause and are not just me whining.

Thank you.
Nela

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Replies to "Thanks so much for your candor. Yes, for a long time this has been an issue...."
petuniamom567 | @petuniamom567 | Jun 17, 2022

I was referred to rheumatologist immediately. He was a smart and conscientious. He, along with
my CFS doctor who happened to be an immunologist, immediately did all the blood tests thought to be essential 30 years ago. The Ebstein Barr test was elevated. At that time they didn't give me the titer. They also did the ANA and assorted other blood tests. Lyme
disease was also tested for as it had just come on the medical scene. A good rheumatolgist is a good bet, I think. You have nothing to lose and lots to gain if he or she comes up with anything.
ME/CFS at the current moment doesn't have a test that's a marker which seems amazing. According to what I've read, they can see brain lesions on very specialized MRI's or PET scans. Most doctors don't order these. Apparently they do in England. However, there doesn't seem to be any treatment being offered in England. All this is very discouraging, I know. Sorry to hear about your gardening as all my gardener friends say the activity does wonders for them psychologically. Perhaps you could break your gardening into small time frames that you could tolerate. I also have friends that garden very early in the morning when it's cooler. Good luck with everything. It is good to communicate with others facing the same challenge. Maybe if everyone keeps talking, the patients will come up with something. Who knows? And don't think of yourself as whiner-----

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