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Fibromyalgia: Anyone out there with the same diagnosis?

Fibromyalgia | Last Active: Aug 2, 2022 | Replies (105)

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@ls1313

Hi, I was diagnosed with fibromyalgia in April 2019. Looking at all the symptoms & body systems it covers, I believe I’ve had it all my life. In my early tween years, my sins hurt so much, it felt like my bones were shattered glass, always stabbing & slicing through my calves. I stopped growing at 12. What had been put down as growing pain was now just not listened to. I’ve had a host of other issues, but you don’t need to be bored! (Let me know if you want me to list all of them. I will.) I see a neurologist instead of a rheumatologist. The “best” in the area was rude, never let me finish a sentence & only wanted to get to his next patient. His attitude was awful. I have never back talked to a doctor, but this ma needed it. The “rooms” we were in were tall cubicle walls with accordion walls going across—in other words, zero privacy. I’m standing there in my little paper top & I stopped the doctor by calling his name. I said, don’t look at your notes. What’s my name? Don’t help him, Ms ——(can’t remember her name now). Long story short, he was horrible. After my next neurology appointment, I might look up a different rheumatologist. My neurologist just tosses prescriptions at me. She doesn’t seem to have any real idea of what to do with a fibromyalgia case. I also have an acoustic neuroma (benign inner ear tumor), and thought since fibromyalgia pain is from your nerves, a neurologist would make more sense than a rheumatologist I was given Lyrica (pregabalin) for my pain & I also got Cymbalta. Lyrica stops pain for some reason. It began as an epileptic med. Cymbalta is an antidepressant. Antidepressants and anti anxiety meds are usually given to fibromyalgia patients, since stress, nerves, anger, etc can all cause pain, keeping your muscles tense. I’m still tense with an antidepressant, anxiety meds & Lyrica (along with diabetes & cholesterol meds). The only time I’m not in pain is when I’m asleep, but I don’t sleep well because my muscle spasms, zaps, zings & pain never stop. I hope you start feeling better soon, though if it’s fibromyalgia, meds just dull the pain. I wish you well.

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Replies to "Hi, I was diagnosed with fibromyalgia in April 2019. Looking at all the symptoms & body..."

regarding muscle spasms that wake you up from sleep; i now take 2 methocarbamol (muscle relaxer) pills, and it makes a big difference. i don't wake up as often during the night with the pain of leg and foot muscle spasms. hope it gets better for you.

Oh, I am so sorry to hear of your pains and troubles finding doctors who will listen and really try to help!!
My son also has horrible pain every minute of every day unless he is asleep, which doesn't happen much because of health problems. So I understand your pain and struggles...tears now for you and all the others who struggle to find just a little peace and comfort! May each of you find a doctor or two who really care and try to find some way to help...is my prayer and hope! Hugs!