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Epstein Barr Nuclear AG AB IGG result of over 600

Infectious Diseases | Last Active: Oct 29 10:35am | Replies (146)

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@petuniamom567

no one suggested DNA study. will ask my primary care physician. haven't seen articles about this. in fact, most of
the information i receive offers no ideas for studies or treatments. the high epstein barr titer problem has been
noted since i developed ME/CFS. originally, doctors said if you pulled people off the street, a high percent would
have this elevated titer since most people have had mono and most don't know it. it does seem odd that the titer
doesn't level off and that certain people develop ME/CFS while others don't. no one has provided answer. the other question is what would physician do with the DNA information? not sure. when you say you're not ready
to limit your activity level, you then have to pay the price. it's called post-exertional malaise. there's no way to avoid this that i know. if you're not getting pem, that you don't really have a major problem and that's super.
if you do have pem, then you have to learn how much wear and tear you body can take. in passing, another test
to have is a herpes test. herpes can be treated if you don't have kidney disease. this treatment might make you feel better. most physicians don't test for this. however, some ME/CFS specialists do. all food for thought. again, do
hope you improve. always good to communicate with someone in similar boat.

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Replies to "no one suggested DNA study. will ask my primary care physician. haven't seen articles about this...."

Thanks so much for your candor. Yes, for a long time this has been an issue. I'm an avid gardener, and that is my primary exercise...15-25k steps over a weekend. In the past two years I have figured out that for every one day (8-12 hours) heavy gardening, it takes three days to recover, sometimes even missing work. I am very, very sensitive to heat, and the longer this goes on, the less time I can do my regular activity without near collapse. The strategy of just "driving to the finish" just doesn't work anymore.

One thing I am starting g to wonder is whether I am referring to the correct "high number" in the EBV tests. Unfortunately, I haven't been able to reach my doctor to clarify. I also have some abnormal liver and kidney numbers from the same draw as my recent EBV.

When you first started this process did you see a rheumatologist?

I am thinking that self-care may start with asking my physician for a referral to a rheumatologist. I've had these symptoms for such a long time, and it was only learning my EBV antibodies are so high (750) that made me start to see that maybe these symptoms have a cause and are not just me whining.

Thank you.
Nela