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Epstein Barr Nuclear AG AB IGG result of over 600

Infectious Diseases | Last Active: Oct 29 10:35am | Replies (146)
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@petuniamom567

Also have extremely high Epstein Barr titer. Have had it for 30 years. After all sorts of tests and trips to doctors,
the differential diagnosis is Chronic Fatigue Syndrome or ME/CFS as it's now known. New name, no known cure.
Aches, pains, foggy brain galore. Have never been told I'm contagious. However, I don't kiss or hug friends and
stay far away from newborns. Have visited experts in the field, virologists, rhumatologists, neurologists. Afraid no one has an answer so I sympathize with you. Wish someone could find some
treatment to do. One thing I have learned is not to knock myself out. I have a two hour bank of energy and that's it.This goes for exercise, too. Find out what you can tolerate. I learned if I pushed myself, I paid. Some people do
recover. Some don't. Good luck to both you and your spouse.

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Replies to "Also have extremely high Epstein Barr titer. Have had it for 30 years. After all sorts..."
texgarden | @texgarden | Jun 15, 2022

Thanks so very much! And thank you for sharing your experience. I am not yet to the point that I have accepted limitations -- but am moving swiftly in that direction.

During your investigations into the "mystery", did you have a DNA study? Not sure that is actually a "thing" that people routinely do.

I can see that this is a process that will require the tortoise approach -- slow and steady. My initial panic didn't help. 😉

Thank you again!! And sending positive wishes for your continued understanding, both of the disease and of ways to cope.

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