← Return to Grover's Disease: What works to help find relief?
DiscussionGrover's Disease: What works to help find relief?
Skin Health | Last Active: Dec 6 3:31pm | Replies (2018)Comment receiving replies
Replies to "76 yr old white male diagnosed with Grover's. Rash has spread down arms to palms &..."
Sorry to learn of the severity for you. For ~20 yrs. mine comes and goes for months at a time and has been confined to torso. I once had a PCP RX tetracycline for rash, but the side effects appeared to outweigh the possible benefit.
Steroids will give you temporary relief, but you can't take them for more than a week. Different things work for different people. My best advice is to go back to the beginning of this blog and start reading. There is a lot of really good advice here, more than any doctor can prescribe.
If you're like me you will try everything! Steroid creams help many (otherwise they wouldn't be used). For me they didn't do enough. I found a high strength 10% menthol cream, like Ben Gay, Icy Hot or knock-offs to be extremely effective in stopping the itch for 6 hours or so. Sometimes I mix with the steroid cream. Others here were helped (some dramatically) by Cilantro smoothies. Not me. I found two things in addition to the 10% menthol to help decrease symptoms by 70% or more: sleeping in a hammock (the key here is ventilation...make sure bedding and clothing and arm chairs are breathable) and antihistamine (Claritin in the AM and Benydryl before bed).
More on ventilation. Anything non-porous is bad: leather upholstry, foam or water mattresses, memory foam toppers, tight fitting polyester clothing, etc. . Your skin needs to breathe. Place one of those throw pillows with batting (not foam) between your back and your leather arm chair. Use a mattress cover that is made of bamboo or cotton I'm 67 and sleep in a hammock, but won't be able to do it forever because its difficult to get out of it in the middle of the night. So eventually I'll need to return to a mattress. The key is breathability.
Then there is UV narrowband light. My Doc has great success with it, but it requires going in five times a week for six months, then continuing twice a week maybe forever. So far I haven't been willing.