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Kidney Transplant: Questions as I prepare for transplant

Transplants | Last Active: Mar 5, 2023 | Replies (28)
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@l0lag0lag0b3

Since you had a bi-lateral nephrectomy, may I ask what was the criteria for that removal, were the native kidneys causing infection.

Reason I ask is: I am nearing 3 years of Kidney transplant ( new kidney is performing nicely) & both of natives are still in my system and I suspect they are still online within the blood flow system (probably less that 2%) but are generating EPO & contributing to PTE secondary.

Any comments would be appreciated...Thanks

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Replies to "Since you had a bi-lateral nephrectomy, may I ask what was the criteria for that removal,..."
Rosemary, Volunteer Mentor | @rosemarya | Jun 11, 2022

@l0lag0lag0b3, I would like to reach out and offer a virtual handshake to welcome you to Connect. I'm happy to hear that your transplanted kidney is doing well.
I have a transplanted liver and a kidney. My transplant was 13 years ago, and they are doing well. My kidneys failed suddenly while I was waiting for my liver transplant. The diagnosis was hepatorenal failure. I still have my native kidneys, and they don't produce urine. As long as they don't cause any problems, it is my understanding that they will remain in place.

I realize that you came to Connect with a question, however I have a question for you because now I'm curious. How did you learn about/become suspicious of your native kidneys that would warrant their removal? Were there any specific tests performed, or any symptoms related to the EPO (Erythropoietin Hormone) or the post transplant Erythropoietin? Has your kidney transplant team expressed any concern?

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