Hip revision: How can I get the best recovery?

I’m replying to #itssally (I think) and someone who said their muscle was “like oatmeal”. I’ve tried for maybe 2 years looking for legal councel to no avail…unfortunately, when I had my 1st implant, it was 6 weeks after my last child (c-section) & a 2 yr old at home. Needless to say I was busy. I saw the Stryker recalls on tv, but I had no idea that they were being recalled for metal issues. The commercials said “failure”, I thought I was a lucky one…I didn’t know what model my hip was then. That was in 2004. Just had rev. due to metallosis…I had never heard of that either. So, to who said their …was like oatmeal…I had my rev. in 2020. Was never told about having blood testing for metal. I finally got the op report. It stated area around the implant was “like grated cheese”. I have no idea how long I had metal seeping. But I can say it’s done quite a bit…I don’t even know who I am anymore. My oldest left home because I’ve changed so much.
I don’t want to live like this anymore…it’s been 2 years & my mental state, not to mention all my gut issues, have not gotten better.
It’s the most helpless feeling…
I don’t even know who or what I was sending this to. I’m practically brain dead…it comes & goes at different degrees. Good luck

If you’re interested in a healthcare advocate group, let me know. I think they could provide you with the best, current treatments available.
I’m so sorry for all your pain!
Cathy

Hi Adam, welcome. You may have noticed that I moved your message to this existing discussion called "Hip revision: How can I get the best recovery?" I did this so you can connect with other people like @oregonjan @ladyelaine @gfred @cynthiaarment @bcs123456 @sueinmn who have experienced hip replacement, revision and failed revisions.

You may also be interested in these discussions:
- If you're living without a hip like me, please reach out to me https://connect.mayoclinic.org/discussion/if-youre-living-without-a-hip-like-me-please-reach-out-to-me/
- Walking without a hip joint https://connect.mayoclinic.org/discussion/walking-without-a-hip-joint/
- Living without a hip https://connect.mayoclinic.org/discussion/living-without-a-hip/

Adam, are you working with physical therapy to regain mobility?

I’m interested in anything or anybody that could do anything positive for me…anything that may resemble the person I once was. It may be too late….I think I may have some internal issues due to the 1st hip. Crippling depression ….yada yada yada

This sounds odd and I need to know the doctor’s reasoning before commenting further.
I am a retired physician who also needed a revision at 5 years. These scenarios can get tricky
but there is legitimate room for hope. Please let us know the reason behind this change of plan then perhaps we can gain the insight needed to make some suggestions. Best of luck.

I had two hip revisions, left hip in 2016, right hip 2017. (Original hip replacements were done in 2005 and 2006 respectively) Left revision a success; problems with right hip 3 years later due to failed allograft and implant migrated. I’m able to walk ‘tho experiencing some pain and discomfort. Holding off on surgery to correct as I am not ready to face another surgery since I’m not (yet debilitated). My surgeon is not pushing me to have it done until I’m ready.

I developed a hip infection five yrs. after total hip replacement. Don’t know where the infection cam from. I finished antibiotics, and had spacers eight months ago. From the beginning, the plan has been to remove spacers and place new hip. My last doctor appointment, the doctor completely changed the plan. He began discouraging me from having this surgery. He recommended physical therapy to see if I could reach a point where I am happy keeping the spacers, and not having metal hip replaced. I had no questions, as I was in shock. I just started PT, and am very frustrated. I think it will be my decision whether to keep spacers or get new hip. I need his advice, or somebody’s advice about what to do. My “normal” leg isn’t recovered strength after little use all these months. I welcome any response. At this point, I just hope to walk with a cane, hopefully. Thanks for caring!