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← Return to Pulmonary Fibrosis*
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Hi all,
I'd like to introduce you to newest member of the moderating team, @ethanmcconkey. Some of you have already seen Ethan in the Lung Health group connecting new members with long-standing members. As with all the moderators, Ethan will be in the background, keeping Connect welcoming, safe and inclusive. Learn more about why and how we moderate: https://connect.mayoclinic.org/page/about-connect/tab/moderators/
As the activity and discussions related to pulmonary fibrosis (PF) grow, we plan to open a group dedicated to PF. Ethan will be helping me with that.
In the meantime, there are few members we haven't heard from for a while.
@francko, how are you doing? Did you find a portable oxygen machine that works for you?
Also, @penlee have you found strategies to cope with the ongoing fatigue? Does the cooler weather help?
@keira were you able to get that chronic cough under control? What helped?
Let's help Ethan get to know you -- the members of this group. Post an update, tell the group a little about you and how you're doing.
Replies to "Hi all, I'd like to introduce you to newest member of the moderating team, @ethanmcconkey. Some..."
hi, just got back in touch,as I said before I have Pulmonary Fibrosis & now also have pulmonary hypertension. I am 74 & was diagnosed in 2016 with IPF & this last yr.pulmonary hypertension. Am on Esberit ..maybe a year or not but close.I had so many health issues & surgery before the diagnosis which started around 2010 before that a healthy woman. But with the surgery on my feet I got infections & had to have surgery for those plus knee replacement & both shoulder need surgery which I will not have..Was in & out of wheelchair with foot surgeries also & put on to much wt. (need to lose it it wil help with the IPF &PH after all that ...then 2016 The IPF so now have to work hard again because of lung issues. I have one son & 3 grandchildren @ greats too (TWINS) I am blessed but still a little fed up but certainly not giving up..Kathleen....to all of you I wish you peace & to feel better.
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Hi Ethan...welcome aboard!
I do have a quick question for the group ….I flew last Thursday for the fist time in 6 years since my disability. Prior to that I have flown over a 1,000,000 miles.
I have an Oxus POC that took with me. While in flight I checked my o2 several times getting readings from 61-75% , my usual readings are 88-92% . I wonder if the purity of the o2 in an aircraft might be slightly less than normal causing the concentrator to not produce as good? Plus I think I had the begging on a flare.
I'm heading back Monday and its a 2 hour flight so not too long.
Any and all feedback is greatly appreciated.
Breathe easy