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I've had CML for 20 years and want to encourage others

Blood Cancers & Disorders | Last Active: Mar 29 1:41pm | Replies (23)
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@suzie71

I had CML since 1998, and went through Interferon and Ara-C which did nothing for me. I started Gleevec in Oct of 2000, and continued to take it all the way up to 2018. I have been off all treatment since Feb of 2018, and have been PCRU since 2002. My doctor told me in January that I am declared cured after all these years. I just want those who have CML that it is not a death sentence. Newer and Better treatments will get you through this disease without a BMT. I just wanted to encourage anyone, especially newly diagnosed patients that they can beat this disease.

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Replies to "I had CML since 1998, and went through Interferon and Ara-C which did nothing for me...."
anglis | @anglis | May 30, 2022

OMG! SUZIE71! That's wonderful news! Congratulations! I'm so happy to hear of your cure. I myself am getting ready to come off of Dasatinib for 2 years to see if I'm cured. My last BCR showed undetected. If in the next 3 months it shows undetected, then fingers crossed, I might be cured.

*I was diagnosed in 1995. Hydroxeria, then interferon, I was on the study for Gleevec (STI571 was it clinical trial name here in London) then Dasatinib.*

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