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DiscussionFibromyalgia: Anyone out there with the same diagnosis?
Fibromyalgia | Last Active: Aug 2, 2022 | Replies (105)Comment receiving replies
Replies to "Hi everyone, I have had fibromyalgia for 9 years meaning diagnosed with it since 2013 probably..."
I have Vulvodynia which I think is some type of neuropathy. I have been taking lyrica since the second week in February. I worked my way up to 75mg in the morning and 100mg at night. At first it appeared to help a little and now I already feel like it is no longer working. When I take it my head feels numb and I am a little dizzy so I don’t want to increase the dose. At first when I felt like it was working I put up with the dizziness and numb head. I have had this pain for 4 years. Has anyone else have Vulvodynia?
My neurologist gave me a prescription for flexaril (cyclobenzaprine) to take as needed, when my arms, legs or back just won’t stop hurting. I am on the same dosage with Lyrica. Since I also have MDD (major depressive disorder) and extreme anxiety, I also take Effexor Xr (225 mg/day—in 3 -75 mg capsules every morning), Wellbutrin 300 mg tablet), Xanax (4 mg in the middle of the day) and Trazadone for sleep. I’m sure I’ve had fibromyalgia all my life, as I think back. From the age of 10, I’ve had optic auras. They used to be followed by a migraine, but now I just get the aura. At 12, I stopped growing. But by 13, I kept having the feeling that my shins were made of shattered glass cutting through my muscles. I felt it more if I was very tired. It was pushed off as growing pains, but I wasn’t growing. I think I have IBS-C. I’m going to see my gastroenterologist at the end of June.
For extra pain relief, my neurologist told me 1-3 ibuprofen (advil) are fine. That would be 200-600mg. I see a neurologist for my fibromyalgia because I have so many other neurological problems. Weather bothers me terribly too. I live just outside Detroit, Michigan. This spring has been crazy with the weather! Oh, I also have chronic vertigo. As storms come & go, my head gets more or less spinny! Life is so much fun as we grow older!