Is the amyloid microclot test available in US?

Posted by ebergfeld @ebergfeld, May 19, 2022

Referencing this paper: https://www.researchsquare.com/article/rs-1205453/v1
I am writing to ask if anyone knows what medical facilities (Mayo?) are doing the amyloid microclot test? and are any willing to try the treatment that is provided in the referenced paper? The work was done in S Africa.

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tiredmommy | @tiredmommy | May 23, 2022

I haven’t but also was wondering why more aren’t pursuing this. Makes good sense to do tests for this.

tiredmommy | @tiredmommy | May 28, 2022

So I’ve been researching and heard this is the only place in US doing the micro blood clot test:

Found via Twitter researcher Prof Doug Kell — “In the US rthm.com is a place to contact.”

I went to website and they aren’t in my state yet but put myself on waitlist. They are in AZ, CA, FL, OR and WA.

I recommend researching this more but sharing what I’m finding. I feel like Mayo Clinic would be my first choice if they offered it.

Also as with anything scammers are already sending emails about fake tests. Dr Kell notes that on his website. Here is link:http://dbkgroup.org/longcovid/

To be clear, I have not researched Dr. Kell so I’m not recommending this. But sharing what I’m finding.

pacer3702 | @pacer3702 | May 29, 2022

Thank you for the link to Dr. Kell's web site. Great information!

tiredmommy | @tiredmommy | Jun 1, 2022

I talked with the rthm today. They have waitlist on website. They are definitely the ones who will offer in US first microclot test. However, they aren’t there yet and probably won’t have anything until October. A bit out but wanted to share latest. Thry are currently only five states but Virginia and many more seem to be on list. They aren’t accepting any new patients until August. They are in process of hiring and training more staff to help them. Again not recommending them as I haven’t validated this group, but they are being referred by FDA and do seem to have reputable partnerships at first glance. There are a ton of scams out there so we all need to be extra diligent to be aware of things that sound too good to be true.

Lucy | @welchllb | Jun 3, 2022

In reply to @tiredmommy "I talked with the rthm today. They have waitlist on website. They are definitely the ones..." + (show)

Thank you. What's rthm? I live in MI. If you hear anything, please let me know. Appreciate you.

arukuathome | @arukuathome | Jul 21, 2022

In reply to @welchllb "Thank you. What's rthm? I live in MI. If you hear anything, please let me know...." + (show)

I'm in Michigan too and am interested in this. I'd even be willing to travel a bit (but not out West).

suzettegiordano | @suzettegiordano | Jan 5, 2023

In reply to @tiredmommy "So I’ve been researching and heard this is the only place in US doing the micro..." + (show)

How do u get on the waitlist?

chinnk13 | @chinnk13 | Jan 6, 2023

In reply to @welchllb "Thank you. What's rthm? I live in MI. If you hear anything, please let me know...." + (show)

In Michigan as well. I would definitely do this.

talford | @talford | Jan 7, 2023

I read in a post somewhere that a lady was tested at the Mt. Sinai Long Covid clinic. Based on info from a British blog post, I've begun taking Nattokinase, a natural Japanese enzyme that's been found to dissolve microclots.

suzettegiordano | @suzettegiordano | Jan 8, 2023

In reply to @suzettegiordano "How do u get on the waitlist?" + (show)

Ty so much 🙏 I tried to look on that website u posted b4 and it didn’t show who to contact for that test procedure. I live on Las Vegas so it would probably be California or Az but hopefully can figure out how to put myself on the waitlist. Ty again and please keep us updated on your status.