← Return to Liver transplant - Let's support each other

Discussion

Liver transplant - Let's support each other

Transplants | Last Active: 4 days ago | Replies (1606)

Comment receiving replies
@rosemarya

@gerryp, Hi and Welcome to Connect. I had never heard of SSC before. I did hear of PSC because that is why I was sent/flown to the Mayo in Rochester (the top specialist in PSC). Like you I had my transplant at age 60! Last week I had a very successful check-up for my 13 th year anniversary of my liver and kidney transplant. I have the lucky fortune of seeing both departments! I really can't say who was more thrilled at my good report - me or the transplant doctors! Those folks are amazing.

Congratulations on your recent transplant!
I joined Connect because I also wanted to give back and to meet others with liver transplants. Now I have met people from all over the world here on Connect with so many beautiful stories. I count you as one of them. Gerry, You are most welcome to use this Mayo Clinic Connect Patient Transplant Discussion Group to reach out and support others! I encourage you to share and use your experience to support others in any of the discussions anytime!

Here are a couple of my favorite discussions to get started:
-Everyone has a transplant story to tell
Organ Donation and Transplant: What is Your story?
https://connect.mayoclinic.org/discussion/organ-donation-and-transplant-what-is-your-story/

-Everyone is invited to share hope in a photo or memory._
Snapshots of hope: Life on the other side of transplant.
https://connect.mayoclinic.org/discussion/snapshots-of-hope-life-on-the-other-side-of-transplant/

Gerry, Will you have a 4 month checkup?

Jump to this post


Replies to "@gerryp, Hi and Welcome to Connect. I had never heard of SSC before. I did hear..."

Thank you Rosemary and congratulations on your 13th anniversary. It gives us newbies tremendous hope for the future.
SSC is very rare because most people don’t survive the organ failure. I was one of the lucky ones. My team at MGH said it was because my heart was so strong.
Thanks for the links to those 2 sites. I will check them out.
I will have my 4 month checkup at the end of June. Then I expect that the Docs will start to wean me off some of the drugs I’m taking so I can be on a long-term maintenance program.
Gerry