Idiopathic neuropathy and dizziness.

Many thanks. Your “walking” experience sounds almost identical to my own. I’m a retired dentist (from a neuropathy) but can still extract teeth, and so I have been doing international medical/dental mission trips since 2004. I just returned from a Ukraine, Gambia, Turkey “tour” where I started using a walking stick to help with proprioception.
Thanks for the encouragement, and will pray for both of us to stay as “well” as we possibly can.

Welcome @grateful4life22, I really like the member name you chose. It's good to focus on the positive. Do you mind sharing a little about your diagnosis and any treatments that help you? Have you also been diagnosed with neuropathy?

My prayers are with us. Can you share how long it took for you to lose the ability to walk without aid? Did you get a diagnosis of neuronopathy or neuropathy?

Actually I am just beginning to have a cane or walking stick with me at all times. This is still new and unfamiliar territory for me. My diagnosis is “Sensory motor peripheral polyneuropathy.

Mine is sensory alone but they say balance issues will affect mobility…

The Facebook group Neuro V Long-Haulers is a great source for information, help, and support for people with known or suspected vaccine injuries. I developed an acquired atypical sensory and motor polyneuropathy, which began within 2 weeks of the first Pfizer vaccine. Prior to the vaccine, I was healthy and walking 9-12 miles per week. My symptoms are slowly improving, which is also consistent with a vaccine injury.

My foot neuropathy got significantly worse after the second Pfizer v. It definitely causes and aggravates neuropathy. Eventually the medical community will accept it

I do and do get dizzy. I also feel like no one could explain it so they give it a name idiopathic nephropathy. I was told it was a minor inconvenience. That's a hard one for me to take, because it has changed by life and I'm getting no recognition of that or answers other than drugs. I feel like something else is going on and no one really knows so they give it a label and meds. I've been trying to stay active. My feet, legs and hands are numb. Luckily I don't have much pain. I also have tried to eat an anti inflammatory diet. I have always wondered if this isn't caused by Lyme disease, I've had tick bites. Tests show that I'm OK, but I really wonder? This sounds pretty negative, but try to stay positive. Those of us who share this understand!

@christine71, It can be really difficult to understand when there just doesn't seem to be an answer. One thing we can do as patients, is learn as much as we can about our condition and be a better advocate for our treatments. For neuropathy, there are two sites that I have learned a lot from and you might also find them helpful.

-- Neuropathy Commons: https://neuropathycommons.org/neuropathy/neuropathy-overview
-- Foundation for Peripheral Neuropathy: https://www.foundationforpn.org/

Like you mentioned, it helps to stay positive!

I've experienced dizziness/ vertigo a few times over the last 15 years. I also have PN (numbness of the feet), diagnosed by a neurologist, but there is no known neurological cause of my dizziness/ vertigo.

That said ... an ear, nose, & throat (ENT) specialist examined and tested me after I experienced my first and most severe dizziness/vertigo and she diagnosed menieres disease. I also have a history of ear wax buildup and need to remove it once or twice a year when it impacts my hearing. I'm not a doctor, but I know that dizziness/vertigo can have multiple causes, and it's often caused by inner ear conditions. You might consider meeting with an ENT specialist with the aim of finding the root cause of your issue and seeking treatment.