@JustinMcClanahan
Thanks Justin for your caring
Yes I have symptoms of excess mucus without coughing up for 4 months
and still I could not fin the accurate diagnosis
I use montelucast and anti histamine medicines but it did not give me any better
currently I use serrapeptase enzyme and i feel it help me temporally
so my question id what are the types of medical examinations can help in giving accurate diagnose for the PF?
I went in the hospital for what I thought was a heart attack it turned out to be a false alarm although when my dr came in to discuss the cat scan told me I had IFP kinda through me for a loop I have a consultation set up for later this week and a second appointment set up in 5 weeks which I believe will be for another c scan or image to see the progression he did mention that it is very early because I have no symptoms. I have acid reflex for the past 10 years or so.
I went in the hospital for what I thought was a heart attack it turned out to be a false alarm although when my dr came in to discuss the cat scan told me I had IFP kinda through me for a loop I have a consultation set up for later this week and a second appointment set up in 5 weeks which I believe will be for another c scan or image to see the progression he did mention that it is very early because I have no symptoms. I have acid reflex for the past 10 years or so.
I was so tired I had to nap all the time and then got short of breath so I was sent to see a pulmonologist and after many tests he discovered I also had IPF. I am not a smoker or had other conditions which cause this disease. I have been around smokers a lot and now I think it could be second-hand smoke. I am early stages also but was put on night-time oxygen and feel much better. I hope you are doing well after your further testing. Exercise and keep up your strength.
I went in the hospital for what I thought was a heart attack it turned out to be a false alarm although when my dr came in to discuss the cat scan told me I had IFP kinda through me for a loop I have a consultation set up for later this week and a second appointment set up in 5 weeks which I believe will be for another c scan or image to see the progression he did mention that it is very early because I have no symptoms. I have acid reflex for the past 10 years or so.
similiar situation, i am non smoker that is why they define it idiopathic pulmonary fibrosis..I have been on O2 5 yrs @ first 3 ltr then 5, now. I have had good results withEsbriet med 2 yrs now. Be encouraged, this IS a liveable condition with some adaptation to you life style!
Colleen Young, Connect Director | @colleenyoung | Jan 31, 2017
@agullotti, getting a new diagnosis like IPF can be a shock. Here's more information from Mayo Clinic http://mayocl.in/2jAEmAi I'm glad you found Connect to ask questions of people who are living well with IPF. What's your biggest concern?
I haven't even seen my pulmo yet other than the 10 minutes in the hospital. It is all surreal. I see them tomorrow. I also have submitted the form to see someone in mayo. I am just numb. In the hospital they did the c scan, an echo and numberous other tests and I guess I'm just in the dark about all this.
@agullotti, getting a new diagnosis like IPF can be a shock. Here's more information from Mayo Clinic http://mayocl.in/2jAEmAi I'm glad you found Connect to ask questions of people who are living well with IPF. What's your biggest concern?
I have been very active working a lot 60 hours on average played hockey when I was younger. Still love to scuba dive with my wife. I guess that's all going to change.
@agullotti, getting a new diagnosis like IPF can be a shock. Here's more information from Mayo Clinic http://mayocl.in/2jAEmAi I'm glad you found Connect to ask questions of people who are living well with IPF. What's your biggest concern?
I went to pulmonary rehab at a local hospital. I have an exercise program for my situation. My doctor just stressed how exercise is what will keep me strong. I will be 80 years old in a couple months and am still active although I had to give up golf. Good luck with the scuba diving. What fun!
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@JustinMcClanahan
Thanks Justin for your caring
Yes I have symptoms of excess mucus without coughing up for 4 months
and still I could not fin the accurate diagnosis
I use montelucast and anti histamine medicines but it did not give me any better
currently I use serrapeptase enzyme and i feel it help me temporally
so my question id what are the types of medical examinations can help in giving accurate diagnose for the PF?
Hisham, click this link http://mayocl.in/2jiwXcU to see tests and examinations done to accurately diagnose PF.
I went in the hospital for what I thought was a heart attack it turned out to be a false alarm although when my dr came in to discuss the cat scan told me I had IFP kinda through me for a loop I have a consultation set up for later this week and a second appointment set up in 5 weeks which I believe will be for another c scan or image to see the progression he did mention that it is very early because I have no symptoms. I have acid reflex for the past 10 years or so.
I was so tired I had to nap all the time and then got short of breath so I was sent to see a pulmonologist and after many tests he discovered I also had IPF. I am not a smoker or had other conditions which cause this disease. I have been around smokers a lot and now I think it could be second-hand smoke. I am early stages also but was put on night-time oxygen and feel much better. I hope you are doing well after your further testing. Exercise and keep up your strength.
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1 Reactionsimiliar situation, i am non smoker that is why they define it idiopathic pulmonary fibrosis..I have been on O2 5 yrs @ first 3 ltr then 5, now. I have had good results withEsbriet med 2 yrs now. Be encouraged, this IS a liveable condition with some adaptation to you life style!
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1 ReactionThanks for your great response I was beginning to think the worse thanks again
@agullotti, getting a new diagnosis like IPF can be a shock. Here's more information from Mayo Clinic http://mayocl.in/2jAEmAi I'm glad you found Connect to ask questions of people who are living well with IPF. What's your biggest concern?
@loisblo, what is your exercise of choice?
I haven't even seen my pulmo yet other than the 10 minutes in the hospital. It is all surreal. I see them tomorrow. I also have submitted the form to see someone in mayo. I am just numb. In the hospital they did the c scan, an echo and numberous other tests and I guess I'm just in the dark about all this.
I have been very active working a lot 60 hours on average played hockey when I was younger. Still love to scuba dive with my wife. I guess that's all going to change.
I went to pulmonary rehab at a local hospital. I have an exercise program for my situation. My doctor just stressed how exercise is what will keep me strong. I will be 80 years old in a couple months and am still active although I had to give up golf. Good luck with the scuba diving. What fun!
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