I was diagnosed with IPF 16 years ago. Since then I have only been taking acid reflux pills (2) per day. I work out in a gym 3 times/week and don't seem to lose my breath. When walking, I do. My doctor advises that I should take Esbriet but I am reluctant. My heart is strong and I sleep 7-8 hrs./night. I am at an impass as to what to do. I am 76. My symptoms increased slightly in 2013
hi, i have been on Esbriet 18 months. very pleased with results i also use O2 24-7 some side effects but do-able,recently reduced to 6 caps aday 270mg.breathing test have improved! go for it
I first was diagnosed with pulmonary hypertension and in trying to find out what was causing that, they found it was IPF, So about 4 years since the beginning. Are you on oxygen yet?
I was diagnosed with IPF 16 years ago. Since then I have only been taking acid reflux pills (2) per day. I work out in a gym 3 times/week and don't seem to lose my breath. When walking, I do. My doctor advises that I should take Esbriet but I am reluctant. My heart is strong and I sleep 7-8 hrs./night. I am at an impass as to what to do. I am 76. My symptoms increased slightly in 2013
Hello @hishamhussain. While I see that you tagged spicegirl and Colleen Young, here are the techniques used by Mayo Clinic to diagnose Pulmonary Fibrosis, http://mayocl.in/2jiwXcU.
Have you had issues with an inaccurate diagnosis regarding PF in the past?
I was diagnosed with IPF 16 years ago. Since then I have only been taking acid reflux pills (2) per day. I work out in a gym 3 times/week and don't seem to lose my breath. When walking, I do. My doctor advises that I should take Esbriet but I am reluctant. My heart is strong and I sleep 7-8 hrs./night. I am at an impass as to what to do. I am 76. My symptoms increased slightly in 2013
@inpiration
Could you please tel me why you use acid reflex pills?
do you have GERD or Digestive problems?
and what the relation between PF and acid reflex pills?
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hi, i have been on Esbriet 18 months. very pleased with results i also use O2 24-7 some side effects but do-able,recently reduced to 6 caps aday 270mg.breathing test have improved! go for it
I have IPF.
how long since your diagnosis? i have going on five yrs. i posted nov. 2016 some detail
I first was diagnosed with pulmonary hypertension and in trying to find out what was causing that, they found it was IPF, So about 4 years since the beginning. Are you on oxygen yet?
Hi @oliver22, thanks for welcoming new member @loisblo.
Let me introduce you to a few other Connect member who have been talking about pulmonary fibrosis @nancyligon @pd02 @powderpuf @inspiration @muskiemama @chicoco @jvivian @mairi.
Are you on oxygen?
What are the types of examination can give ACCURATELY diagnosing of PF?
@spicegirl,
@colleenyoung
dear @inspiration
what is the relation between acid reflux pills which you used and IPF?
do you have gatsrIicproblems causing IPF?
Hello @hishamhussain. While I see that you tagged spicegirl and Colleen Young, here are the techniques used by Mayo Clinic to diagnose Pulmonary Fibrosis, http://mayocl.in/2jiwXcU.
Have you had issues with an inaccurate diagnosis regarding PF in the past?
yes 24-7 5 ltrs pulse setting for 3 yrs
@inpiration
Could you please tel me why you use acid reflex pills?
do you have GERD or Digestive problems?
and what the relation between PF and acid reflex pills?