Thank you! I will call tomorrow!! I don't know why my doctor didn't give me more information when he gave me the diagnosis of IPF. When I went home and looked it up on the internet, I was floored! I didn't know that the prognosis was so dire. I want to at least stay at the same level, not get worse. I want to start any treatments that may be available and start them right away. I don't want to waste any time! Thank you for the information. --Ann

My pulmonary dr. prescribed a Z-Pak which worked great for the severe sinus infection I had.
Are you on oxygen at all? Your primary dr can prescribe med for you too. Hope you feel better soon -

Hi Tula:
I was also prescribed lots of ZPac
I eventually discovered it simply was not working!
I did research and read where zPac perhaps is not for everything.
A pulmonary appointment is what I answered my questions about my symptoms. Have you seen a Pulmonologist?
I'm so happy you found Connect!
Lindsy- mentor

I found ZPak did work that time but a Prednisone regimen in May of this year helped immensely and I am on a maintenance dose of 10 msg daily. My chest still gets tight & I have a croup like cough right now. Nothing has changed as far as meds get recently.

Actually, I have two pulmonologists on my team and I have a referral to go to Ann Arbor U o M to get an opinion from a larger group of experts. Info is about I have now because, as you know treatment for IPF is scarce, Esbriet side effect r too much for me & age precludes any transplant option. I'm thankful for this site and all the good people who r generous w/ Info.

Would like to hear the results of your discussion about using Nintedanib. I have the same disease and the same daily routine.