← Return to Advantages of Eliquis or Xarelto over Coumadin?

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@confederatesteel

I have had 2 episodes with PE. Now I am on Xarelto for life. Don't like that. I have muscle pain, joint pain, and tiredness. I could go on coumadin but am afraid of that too. I was on it about 10 years ago with no affects. Don't know what to do. I'm 64 and want to live normal.

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Replies to "I have had 2 episodes with PE. Now I am on Xarelto for life. Don't like..."

Welcome @confederatesteel, I know it can be the pits when you have muscle and joint pain along with being tired all the time. I'm not sure this will help but here is some information that may help you manage the symptoms.

"Why do I feel so tired and all my joints ache?
Fatigue can be linked to many types of arthritis and related conditions. It's commonly a symptom of autoimmune conditions, such as rheumatoid arthritis, reactive arthritis and lupus. In autoimmune conditions the immune system mistakenly attacks the body's own healthy tissues." --- Managing fatigue | Causes, self-help, support - Versus Arthritis: https://www.versusarthritis.org/about-arthritis/managing-symptoms/managing-fatigue/

Have you discussed your symptoms with your doctor?

I hear what you are saying!! My husband has no energy whatsoever, sleeps all the time. We have a doctor's appointment this morning so I want to discuss this with him. He has Afib so he will have to take a blood thinner for life too. Xarelto is definitely more convenient but there are a couple of things that concern me, the lethargy being one. Also I read that there is no antidote to internal bleeding with Xarelto or Eliquis (which he's allergic to) but there is for coumidin. If you end up with internal bleeding, the antidote could save your life. I'm not a doctor so don't quote me on that please. It's what I have read (and I've read scores of information on the internet!).
I hope you feel better. It might be worth seeing your doctor again just to be sure.

Don’t know if this will help you but over the past 18 months, I’ve passed 4 blood clots. The first one was a PE that started as a DVT in my right calf. I felt it go up my leg, get stuck in my thigh, went thru my armpit and into the heart and landed in my right lung as the PE. Two of the other three were just as serious, one almost completely blocked my stent and the other was so painful I ended up on the floor in agony.

I told you all that because I must take Estradiol, a female hormone which is known to make you throw clots, yet I’m not on any thinner. Twelve years ago, I had to have a procedure done because I had an Abdominal Aortic Aneurysm that was about to rupture and kill me. During the pre-op instructions, I had to stop two of my vitamins because they are natural blood thinners and make my blood to thin during the procedure and cause excessive bleeding. One was Vitamin E and the other was Beta Carotene. This is only a thought, but it you took both vitamins, you may be able to lower your other thinner medications so the side effects might decrease. Talk to your pharmacist and see what they say about taking the vitamins to reduce the dosage need for the medication you’re on. I take them daily and even tho I still throw clots, my Endocrinologist (hormone doctor) hasn’t prescribed a blood thinner drug. Once you’ve talked to the pharmacist, disgust it with your doctor.