1. < Neuropathy

Foot neuropathy: What gives you relief?

Posted by kathrina @kathrina, Nov 5, 2019

It seems if I get enough activity/exercise daily I don’t have pain; if not, am awakened from sleep and must get up (even in the middle of the night). What’s going on & what more should I do to avoid rest-disruption?

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ess77 - Elizabeth | @ess77 | May 15, 2022
In reply to @joypalmer1 "Has anyone tried a grounding mat? I know someone who sleeps on one and she says..." + (show)
@joypalmer1

Has anyone tried a grounding mat? I know someone who sleeps on one and she says it helps her neuropathy in her feet. I’m looking for any remedies for the constant tingling. Are there any topicals that help??

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@joypalmer1, @johnbishop, and all...
I have a friend who now has no knee pain and her other discomforts are improved or gone...since sleeping on a grounding mat!
Haven't tried it yet...thinking about it and maybe a grounding pillow case too. Anyone have ideas?
Elizabeth

REPLY
ess77 - Elizabeth | @ess77 | May 15, 2022
In reply to @archermac15 "For me the worst part is the Restless legs. For most people it's just at night,..." + (show)
@archermac15

For me the worst part is the Restless legs. For most people it's just at night, but when I got the Neuropathy in my hands and feet, that's when the RLS started off and on in January, by February it was constant and I had to get the Lyrica from my pain Doctor my Neurologist didn't even prescribe it. He sent me for labwork to check my Iron, and I went to the lab in pain only to find out that he forgot to put down the test they check for Iron so I had to go again. It turned out that my iron levels were good, but he prescribed Iron anyway. I've heard and read that it's not good to take Iron if your levels are good.

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@archermac15, @johnbishop and all...
I just had last month 2 iron infusions, since my iron FERROUS level was at 15 1 year ago, 27 this year after a year of iron supplement w/C. My sleep doc tested the ferrous level re sleep apnea and severe RLS.
Ferrous needs to be at 75+ per doc to help w/ RLS.

Now, it's 88! Highest probably in many years . No RLS. I also take Requip at bedtime. It helps a lot with RLS, PN, and daytime Parkinsons symptoms. Taking iron supplement now.

I haven't had this kind of intern energy, from inside not forced mentally...for years. I'm a very different version of myself now. Soooo thankful.

Be sure the doc cks your FERROUS level. My hemocrit and hemoglobin are always perfect! 12, 13...ferrous level test is a special test, not usually included in bloodwork.
Wishing you we. This has changed my whole life, and outlook on life.

Hoping this helps...blessings on this journey...elizabeth

REPLY
2 replies
jfn | @jfn | May 15, 2022
In reply to @johnbishop "It hasn't helped me but then I only have numbness with my neuropathy. I've read a..." + (show)
@johnbishop

It hasn't helped me but then I only have numbness with my neuropathy. I've read a lot saying not to drink it close to bedtime but I did come across this interesting article from 2016.

The Role of Caffeine in Pain Management: A Brief Literature Review: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5018099/

I do sometimes drink a cup of coffee in the evening but not right at bedtime because it does tend to make it harder for me to fall asleep. Hopefully someone who has found it helpful can share their experience.

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I have migraine medication that has caffeine as a main ingredient. This medicine works wonders with my migraines brought on by storms. I will pay more attention to what happens to my neuropathy when I use that medicine in the future, most likely tonight.

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Evie | @archermac15 | May 16, 2022
In reply to @ess77 "@archermac15, @johnbishop and all... I just had last month 2 iron infusions, since my iron FERROUS..." + (show)
@ess77

@archermac15, @johnbishop and all...
I just had last month 2 iron infusions, since my iron FERROUS level was at 15 1 year ago, 27 this year after a year of iron supplement w/C. My sleep doc tested the ferrous level re sleep apnea and severe RLS.
Ferrous needs to be at 75+ per doc to help w/ RLS.

Now, it's 88! Highest probably in many years . No RLS. I also take Requip at bedtime. It helps a lot with RLS, PN, and daytime Parkinsons symptoms. Taking iron supplement now.

I haven't had this kind of intern energy, from inside not forced mentally...for years. I'm a very different version of myself now. Soooo thankful.

Be sure the doc cks your FERROUS level. My hemocrit and hemoglobin are always perfect! 12, 13...ferrous level test is a special test, not usually included in bloodwork.
Wishing you we. This has changed my whole life, and outlook on life.

Hoping this helps...blessings on this journey...elizabeth

Jump to this post

Hi Elizabeth,
I'm so glad that your Restless Leg Syndrome is gone. There is another person on here that also was low on Iron and it fixed his RLS too. I was so hoping that this was my problem too, so my Neurologist at 5he time sent me to get my levels checked. Turns out that my Iron level were good. He gave me Iron to take anyway but it didn't do any good, gave me diarrhea and stomach cramps, so I stopped after almost 2 weeks.

REPLY
1 reply
Leonard | @jakedduck1 | May 16, 2022
In reply to @ess77 "@archermac15, @johnbishop and all... I just had last month 2 iron infusions, since my iron FERROUS..." + (show)
@ess77

@archermac15, @johnbishop and all...
I just had last month 2 iron infusions, since my iron FERROUS level was at 15 1 year ago, 27 this year after a year of iron supplement w/C. My sleep doc tested the ferrous level re sleep apnea and severe RLS.
Ferrous needs to be at 75+ per doc to help w/ RLS.

Now, it's 88! Highest probably in many years . No RLS. I also take Requip at bedtime. It helps a lot with RLS, PN, and daytime Parkinsons symptoms. Taking iron supplement now.

I haven't had this kind of intern energy, from inside not forced mentally...for years. I'm a very different version of myself now. Soooo thankful.

Be sure the doc cks your FERROUS level. My hemocrit and hemoglobin are always perfect! 12, 13...ferrous level test is a special test, not usually included in bloodwork.
Wishing you we. This has changed my whole life, and outlook on life.

Hoping this helps...blessings on this journey...elizabeth

Jump to this post

@ess77
Hi Lizzy,
I also take iron supplements. I take it on an empty stomach with a glass of orange juice. Vitamin C help the absorption of iron.
Congrats!!
Jake

REPLY
1 reply
ess77 - Elizabeth | @ess77 | May 16, 2022
In reply to @archermac15 "Hi Elizabeth, I'm so glad that your Restless Leg Syndrome is gone. There is another person..." + (show)
@archermac15

Hi Elizabeth,
I'm so glad that your Restless Leg Syndrome is gone. There is another person on here that also was low on Iron and it fixed his RLS too. I was so hoping that this was my problem too, so my Neurologist at 5he time sent me to get my levels checked. Turns out that my Iron level were good. He gave me Iron to take anyway but it didn't do any good, gave me diarrhea and stomach cramps, so I stopped after almost 2 weeks.

Jump to this post

@archermac15, @jakedduck1 and all...
Well, important fact about taking iron supplements is it must be taken with vitamin C, for proper absorption and tolerance. I took on doc orders OTC Vitron-C. Back on it now. Could not take iron at all since pregnant with my 54 year old son. Remember, thus is Ferrous... not hemoglobin or hemocrit.
❤ 😍 💖 it that something good has happened and life is better!
May it help you too...blessings, elizabeth

REPLY
ess77 - Elizabeth | @ess77 | May 16, 2022
In reply to @jakedduck1 "@ess77 Hi Lizzy, I also take iron supplements. I take it on an empty stomach with..." + (show)
@jakedduck1

@ess77
Hi Lizzy,
I also take iron supplements. I take it on an empty stomach with a glass of orange juice. Vitamin C help the absorption of iron.
Congrats!!
Jake

Jump to this post

@jakedduck1 and all...where's the message I sent you last night????
Lost in the ether? Drat...

Miss you, Jake. Haven't been well for several months but as you read much improved...
God is good. Ba k at therapy pool, working a bit with plants and of course my birds.

Catch you later....ess

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danpinc2022 | @danpinc2022 | May 18, 2022
In reply to @fala "FYI When we have PN, the feet let us know they want attention. Creams, pills, comfy..." + (show)
@fala

FYI
When we have PN, the feet let us know they want attention. Creams, pills, comfy shoes are all important.
So, just sharing this one. I found Circuwear or Incredible socks to be the best socks by far! They make a lot of claims, and I found them to be all true! Bought them on line by OMAX.

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Can you get them on amazon ?

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fala | @fala | May 19, 2022

I have not seen any true "circuwear" socks on Amazon. The have one Diabetic" sock, but I have never tried them.
I hope you find what works for you!

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cbhagler | @cbhagler | May 20, 2022

I have had numbness in the feet and left hand since taking chemo for cancer. The best relief I have found is taking a gabapentin (100mg) at bedtime and rubbing on Mineral Ice. The feet seem to bother me most at night and this combination gives me some relief in order to get to sleep.

REPLY
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