1. < Neuropathy

Foot neuropathy: What gives you relief?

Posted by kathrina @kathrina, Nov 5, 2019

It seems if I get enough activity/exercise daily I don’t have pain; if not, am awakened from sleep and must get up (even in the middle of the night). What’s going on & what more should I do to avoid rest-disruption?

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frattmaa | @frattmaa | May 9, 2022

I take clonazepam at night and this has help immensely. I also take medical marijuana (indica) gummy’s and Kratom. These are a quality of life helper. I rarely have neuropathy at night and I have a bad case of this for 15 years now. It’s worth trying before any surgery due to the risks.
Every one here on this site feels for you. It’s miserable to say the least.

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1 reply
donaldpickett | @donaldpickett | May 9, 2022
In reply to @tomm547 "I am in a similar situation. I have bad neuropathy in feet and ankles and am..." + (show)
@tomm547

I am in a similar situation. I have bad neuropathy in feet and ankles and am taking gabapentin and cymbalta. The cymbalta seems to lessen the pain somewhat but I don't detect any relief from the gabapentin. I am also scheduled for a spinal stimulation procedure in 3 weeks. I am going with the NEVRO System because I have been told it was developed primarily for neuropathy.
Thanks for the tip of soaking feet with cold water. I bought a foot soaker with massaging rolls etc which seems to help but haven't tried cold water yet.
Good luck with your spinal stimulation procedure.

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I wait until the pain wakes me and soak for 10 min.....put some ice in the water. I listen to the TV I usually have to do it twice each night.

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donaldpickett | @donaldpickett | May 9, 2022
In reply to @amyd67 "I too have what you do, and worse at night. I have found that when I..." + (show)
@amyd67

I too have what you do, and worse at night. I have found that when I apply a CBD balm that has menthol or peppermint in it, I get enough relief to fall asleep. I have used several different brands and strengths. Purchased at CBD stores, in grocery stores and companies in n the internet.

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I tried some lidocaine gel and it is sticky. Lidocaine patches work better, just do not cover the entire foot.

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jeffrapp | @jeffrapp | May 9, 2022
In reply to @martyk "Please let us know if your going to go with a spinal cord stimulator. They usually..." + (show)
@martyk

Please let us know if your going to go with a spinal cord stimulator. They usually have a 7 or 10 day trial.

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I bought a stimulator a year ago. It didn't help me, but it may help someone else. If anyone wants it for free, I'll send it to you if you pay the postage. I'd rather not just throw it away.

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Carlos Sierra | @carlossierra1287 | May 9, 2022

Hi Jeff…. In pain 🙁
Thank you for taking the time.
Calling my Pain Mng Dr. My
Neurologists have given up and have told me in front of my wife, just in case I was hearing Wrong…BUT
“ IAM A SPECIAL CASE AND RESORTING TO A STIMULATOR IS MY PATH TO A PAIN-FREE LIFE “…
Inspiraciónal...right.

Jeff, Sir. What else should I know to show my Dr. ?

If allowed would provide my
Cell # but not sure...

I will see about the CLONAZEPAM....the ice is a
pain Killer for me but too much agony... Good for others and suggest it.

PS
to mayo clinic thanks a billion xxxxxx

Carlos is in severe pain and praying

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preknight | @preknight | May 9, 2022
In reply to @frattmaa "I take clonazepam at night and this has help immensely. I also take medical marijuana (indica)..." + (show)
@frattmaa

I take clonazepam at night and this has help immensely. I also take medical marijuana (indica) gummy’s and Kratom. These are a quality of life helper. I rarely have neuropathy at night and I have a bad case of this for 15 years now. It’s worth trying before any surgery due to the risks.
Every one here on this site feels for you. It’s miserable to say the least.

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I also take clonazepam each night and I sleep 7-8 hours each night. Before I started taking clonazepam I slept maybe 3 nights a week. I also take Lyrica 3 times a day, but still have a lot of pain during the daytime. I suspect it will continue to worsen as I get older (I am 77 years old), but as long as I can sleep at night, I can survive.

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1 reply
jayen1234 | @jayen1234 | May 9, 2022

Hi

My name is Jeff. I have chemo induced neuropathy in hands and worse in feet. Neuropathy did not start until two months after chemo ended which was back in October of 2021. So neuropathy has gone on now since January 2022. Tried alot of stuff including, accupuncture, creams, feet injections, calmare scrambler therapy. Now thinking of Peripheral Nerve Stimulator. Less invasive than SCS. has anyone had any experience with this

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1 reply
Mentor
John, Volunteer Mentor | @johnbishop | May 9, 2022
In reply to @jayen1234 "Hi My name is Jeff. I have chemo induced neuropathy in hands and worse in feet...." + (show)
@jayen1234

Hi

My name is Jeff. I have chemo induced neuropathy in hands and worse in feet. Neuropathy did not start until two months after chemo ended which was back in October of 2021. So neuropathy has gone on now since January 2022. Tried alot of stuff including, accupuncture, creams, feet injections, calmare scrambler therapy. Now thinking of Peripheral Nerve Stimulator. Less invasive than SCS. has anyone had any experience with this

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Welcome Jeff @jayen1234, There are a couple of discussions on peripheral nerve stimulators where you can learn what others have shared about their experience.

-- SPR Peripheral Nerve Stimulator (SPRINT): https://connect.mayoclinic.org/discussion/spr-peripheral-nerve-stimulator-sprint/
-- Peripheral nerve stimulators: https://connect.mayoclinic.org/discussion/peripheral-nerve-stimulators/

Is your doctor recommending a specific device?

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1 reply
Mentor
Chris Trout, Volunteer Mentor | @artscaping | May 9, 2022
In reply to @colleenyoung "Hi @donaldpickett, welcome. I added your question to this existing discussion: - Foot neuropathy: What gives..." + (show)
@colleenyoung

Hi @donaldpickett, welcome. I added your question to this existing discussion:
- Foot neuropathy: What gives you relief? https://connect.mayoclinic.org/discussion/foot-neuropathy/

I did this so you can easily connect with other members dealing with foot neuropathy and finding solutions that provide relief, members like @jimhd @user_che214927 (Barry), @artscaping @helennicola and many others.

I can see where soaking in cold water can become a bother to do, but it is a simple and cheap solution if it is working.

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Good afternoon @donaldpickett and thank you @colleenyoung for the introduction. Foot neuropathy is fresh in my mind today. I just returned from a welcome and valuable hour of MFR (myofascial release) therapy for my feet. I have been an SFN (small fiber neuropathy) patient for six years now. I have had my time on gabapentin and find that it helps with the tingly hands better than my feet.

Are you ready for this? Ten days ago I came down with the new COVID omicron variant. I have managed to escape that tragedy for two years and then....all of a sudden it hit me. By far, the most painful part of my body since COVID is my feet. I was unable to go to my regular MFR therapy appointment and ended up having difficulty walking and sleeping because the pain was greater than the usual numbness. I tried elevating my feet without success.

I must say I am thrilled that after one hour of MFR I can wiggle my toes without pain once again. And, of course, when free of COVID I will be able to drive again. If you would like more information, please visit this site.
https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/

Do you think this might help? If you need help finding an Expert level therapist please let me know where you live. You can also find therapists on founder John T Barnes's website, http://www.myofascial.com.

May you be free of suffering and the causes of suffering.
Chris

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jayen1234 | @jayen1234 | May 9, 2022
In reply to @johnbishop "Welcome Jeff @jayen1234, There are a couple of discussions on peripheral nerve stimulators where you can..." + (show)
@johnbishop

Welcome Jeff @jayen1234, There are a couple of discussions on peripheral nerve stimulators where you can learn what others have shared about their experience.

-- SPR Peripheral Nerve Stimulator (SPRINT): https://connect.mayoclinic.org/discussion/spr-peripheral-nerve-stimulator-sprint/
-- Peripheral nerve stimulators: https://connect.mayoclinic.org/discussion/peripheral-nerve-stimulators/

Is your doctor recommending a specific device?

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Hi John

Thanks so much for the quick reply. Doctor has not brought up any specific brand. Just that it might be worth a try for me. He explained the procedure a bit and it seems minimally invasive.

Jeff Nemeth

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