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Bronchiolitis obliterans aka Popcorn Lung

Lung Health | Last Active: May 17, 2022 | Replies (13)
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@colleenyoung

Welcome Ariana. I hope that @annie2 @carol01 @tonya1980 can provide some insights from their experiences.

Ariana, it sounds like treatments are not working as well as they have in the past. Additionally, it has been hard to find a pulmonologist with expertise in bronchiolitis obliterans. Do you have options to seek care with another specialist? Is lung transplant an option for you?

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Replies to "Welcome Ariana. I hope that @annie2 @carol01 @tonya1980 can provide some insights from their experiences. Ariana,..."
arianam24 | @arianam24 | May 17, 2022

Hello,

yeah I have to say in Slovenia is really hard to find specialist especially for bronchiolitis obliterans. Few months ago I have found that pulmonologist, here in Slovenia and I think he is the only one who really knows what this diagnose is exactly is.

Lung transplant, we were discussing about that but rather no than yes, because I have already in the past transplantation of bone marrow and this transplantation as well caused me, besides other diagnoses which I have, bronchiolitis obliterans. As well, hypothetical speaking, if they do to me transplantation, there is still chance that I get bronchiolitis obliterans, which I am already having it now.

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