are you still trying to find Lawyers for class action because I thought same. Im in Australia.
I bet the maker/seller knew dangers, knew they had a better but cheaper option. The 6 week tablets that followed peg int sales.
I want to know what docs etc got from encouraging.
why the class action wasn't made available to all takers and sufferers? Who was allowed to join in? Was is HUSHE UP?
-because I'm over hoping for a cure.
Mostly, as I'm contacting a real person I hope you feel ok today. As far as you can be towards great. All the best, Karin
TO ALL WHOM MAY READ THIS POST, if y’all took interferon/ribaviron pls HAVE UR BONES CHECKED! my bones, for 10 yrs, have been so so painful and sore and my bone mineral density test ONLY SHOWED OSTEOPENIA…but after 5 yrs of begging for a bone marrow biopsy, the biopsy showed that MY BONEA R COMPLETELY HOLLOW!!! I’m talking critical numbers to where I was told that I can turn wrong n break a bone!!! Pls folks, I don’t want anyone else going thru this HELL! PLS GO TO UTUBE N PLUG MY NAME IN…Lisa DeStella to watch my video on MERCK pharmaceuticals
Hi-terrible! I had a bone marrow biopsy n come to find out in top of all the s/e from interferon, now my bones r basically hollow! I’m not making collagen I . This is what ur bones n vascularture is made of!! So terrible n so much pain
Hello Lisa,
Hope you're doing ok. That sounds dreadful for you, your bone marrow. Look I'm in Australia. Did 11 months in '07.
I Have earache always, tinnitus, nausea, travel sickness, joints, Blurry vision deterioration, weird fast rushes of heart beating and suddenly puffed out, migraines and other headaches, neck pain always, early menopause, IBS, seems I'm always straining something. My skin is dry bits, red and patchy. Itchy. No shine or thickness to my hair and no eyebrows, finger n toenails weirdly buckled n brittle. Moods and fogginess. I used to read so much, at every chance. Not now. Concentration missing. Bad light sensitivity need inside dark glasses often and tent the bed for darkness. Plus I hate being so lazy and unmotivated. Feel a bit like I'm unimportant. Perhaps we need one or two high profile sufferers. To gain attention.
I haven't been to lawyers but keep net searching.
I'm so sorry about your bones! Cant imagine that. Be careful. I hope there's a silver lining.
love Karin
I think if possible try not to think about it. At least as far as the thinking is negative for you. (tho I feel the thinking part is part of the result. A symptom of the lagging depression etc. )It won't go away but lawyers? They'd likely be offered more to fail (sorry I am cynical). Unless someone finds a 'do-gooder' who's appalled and also part of a huge successful firm I don't see a poss outcome for us. hope I'm wrong. USA probably has highest results in class action so maybe more likely to attract lawyers. Doubt other countries could join but who knows. There must be lists in every countries Dept Health of patients who used it. I read there was a payout in 2004 but must be wrong seeings I did it in 2007. I hope.
All the best. I'll definitely alert you if info pops it's head anywhere. I truely wish you well Lisa. I still find music the best soother. Do try sniffing some different aromatic essential oils. They also soothing. Sorry if that sounds trite.
Hello Lisa,
Hope you're doing ok. That sounds dreadful for you, your bone marrow. Look I'm in Australia. Did 11 months in '07.
I Have earache always, tinnitus, nausea, travel sickness, joints, Blurry vision deterioration, weird fast rushes of heart beating and suddenly puffed out, migraines and other headaches, neck pain always, early menopause, IBS, seems I'm always straining something. My skin is dry bits, red and patchy. Itchy. No shine or thickness to my hair and no eyebrows, finger n toenails weirdly buckled n brittle. Moods and fogginess. I used to read so much, at every chance. Not now. Concentration missing. Bad light sensitivity need inside dark glasses often and tent the bed for darkness. Plus I hate being so lazy and unmotivated. Feel a bit like I'm unimportant. Perhaps we need one or two high profile sufferers. To gain attention.
I haven't been to lawyers but keep net searching.
I'm so sorry about your bones! Cant imagine that. Be careful. I hope there's a silver lining.
love Karin
I think if possible try not to think about it. At least as far as the thinking is negative for you. (tho I feel the thinking part is part of the result. A symptom of the lagging depression etc. )It won't go away but lawyers? They'd likely be offered more to fail (sorry I am cynical). Unless someone finds a 'do-gooder' who's appalled and also part of a huge successful firm I don't see a poss outcome for us. hope I'm wrong. USA probably has highest results in class action so maybe more likely to attract lawyers. Doubt other countries could join but who knows. There must be lists in every countries Dept Health of patients who used it. I read there was a payout in 2004 but must be wrong seeings I did it in 2007. I hope.
All the best. I'll definitely alert you if info pops it's head anywhere. I truely wish you well Lisa. I still find music the best soother. Do try sniffing some different aromatic essential oils. They also soothing. Sorry if that sounds trite.
Hi Karin!! Dang girl, it sounds like ur just as bad!! Have u had thyroid checked?? Sounds like me before my thyroid blew 2 yrs ago! Also, the problem w my bones is not making collagen type I which matches some of ur s/s! This is pure hell! I took pegatron n ribaviron in 2011 n been pure hell of since! I am a RN with a MPH n another degree n I can barely walk across the room anymore! Chronic fatigue syndrome, fibromyalgia, it died my immune system n I get monthly infusions of gamma globulins (antibodies) for life 😞 I have a utube video under my name which tells all my diseases from Merck pharmaceuticals meds! I hope u r well hun! The only thing that even helps me is to spark up a fatty 🥳 lol hope that doesn’t offend u!! Hope to hear back from u!! Lisa DeStella, Lexington Kentucky
Dear Lisa, not offended and concur.
Lisa I am not nearly as bad as you are. I can easily walk about but get puffed out n about. Tho I was very strong, rode racehorses once.
Did you know of a 2004 class action? Must be fictitious as we were more recent.
Also, mine was called Pegasys. Don't remember Merck? 1+ companies selling it?
In Australia, would we be in different suits if they went ahead?
I might start looking up who fought 'big pharma companies', 'tobacco, chemical companies in class actions.
(pardon abbreviations in rushing.)
The shits should definitely pay up as I'm sure the 6week tablet only course that was offered after our system was finished SO different to ours. It had to have been created for a reason. Ours made them so much more money. A month of the injections was around $6500 a month without the tablets that are taken with them.
They would not choose a cheaper drug to sell. We know they're notoriously money hungry biz according to years of news.
I know I have 'dangerously low iron', low D3- I use supplements. Years ago my doc said fibromyalgia too but not like yours. Fatty's aren't available from shops in Oz. It's an expense and random quality. I still love Australia. Oh, you'd better be careful of 'the virus'. if you believe in it. I was quite unwell after the immunisations.
I'll check out your YouTube when I get home Lisa. Looking forward to it.
Hey, were you very sick w HC before you started treatment? I wasn't and wish I hadn't joined.
Kentucky. I used to read books about Flicka when I was little. Bluegrass. Sounds nice. I really hope you find time to enjoy outdoors. Morning Sun is a charge. Fresh Air. I try that 20 breath intake stuff. Not the ice water tho. It helps me I think. I do it on the ferry in salt air and it feels great for a while. Life's lots of little whiles. Join them up I guess.
Love and great wishes,
Karin
Dear Lisa, not offended and concur.
Lisa I am not nearly as bad as you are. I can easily walk about but get puffed out n about. Tho I was very strong, rode racehorses once.
Did you know of a 2004 class action? Must be fictitious as we were more recent.
Also, mine was called Pegasys. Don't remember Merck? 1+ companies selling it?
In Australia, would we be in different suits if they went ahead?
I might start looking up who fought 'big pharma companies', 'tobacco, chemical companies in class actions.
(pardon abbreviations in rushing.)
The shits should definitely pay up as I'm sure the 6week tablet only course that was offered after our system was finished SO different to ours. It had to have been created for a reason. Ours made them so much more money. A month of the injections was around $6500 a month without the tablets that are taken with them.
They would not choose a cheaper drug to sell. We know they're notoriously money hungry biz according to years of news.
I know I have 'dangerously low iron', low D3- I use supplements. Years ago my doc said fibromyalgia too but not like yours. Fatty's aren't available from shops in Oz. It's an expense and random quality. I still love Australia. Oh, you'd better be careful of 'the virus'. if you believe in it. I was quite unwell after the immunisations.
I'll check out your YouTube when I get home Lisa. Looking forward to it.
Hey, were you very sick w HC before you started treatment? I wasn't and wish I hadn't joined.
Kentucky. I used to read books about Flicka when I was little. Bluegrass. Sounds nice. I really hope you find time to enjoy outdoors. Morning Sun is a charge. Fresh Air. I try that 20 breath intake stuff. Not the ice water tho. It helps me I think. I do it on the ferry in salt air and it feels great for a while. Life's lots of little whiles. Join them up I guess.
Love and great wishes,
Karin
Hi Karin!!! First, n foremost, pls have ur bone mineral density done asap! My vit D stays very low n that is sooo painful n turned out, via a bone marrow biopsy, my bones r hollow n the damage is critical!! My collagen cross link was: 0.005, which is non-existent causing major bone damage. I have 4 sets steel now n more to come!!
I have tried to find help but no one knows anything about post interferon syndrome! Did u happen to loose ur mind on this poison lol? I sure did like a month after the injections! My husband left me n I could practice nursing anymore cuz my patients were getting me sick (RN) n pneumonia 2-4 x a yr!
I was thinking about u last night lol n thought maybe I’ll try another lawyer n try a different strategy ugh 😩 sooo glad I met u!!
Dear Lisa, not offended and concur.
Lisa I am not nearly as bad as you are. I can easily walk about but get puffed out n about. Tho I was very strong, rode racehorses once.
Did you know of a 2004 class action? Must be fictitious as we were more recent.
Also, mine was called Pegasys. Don't remember Merck? 1+ companies selling it?
In Australia, would we be in different suits if they went ahead?
I might start looking up who fought 'big pharma companies', 'tobacco, chemical companies in class actions.
(pardon abbreviations in rushing.)
The shits should definitely pay up as I'm sure the 6week tablet only course that was offered after our system was finished SO different to ours. It had to have been created for a reason. Ours made them so much more money. A month of the injections was around $6500 a month without the tablets that are taken with them.
They would not choose a cheaper drug to sell. We know they're notoriously money hungry biz according to years of news.
I know I have 'dangerously low iron', low D3- I use supplements. Years ago my doc said fibromyalgia too but not like yours. Fatty's aren't available from shops in Oz. It's an expense and random quality. I still love Australia. Oh, you'd better be careful of 'the virus'. if you believe in it. I was quite unwell after the immunisations.
I'll check out your YouTube when I get home Lisa. Looking forward to it.
Hey, were you very sick w HC before you started treatment? I wasn't and wish I hadn't joined.
Kentucky. I used to read books about Flicka when I was little. Bluegrass. Sounds nice. I really hope you find time to enjoy outdoors. Morning Sun is a charge. Fresh Air. I try that 20 breath intake stuff. Not the ice water tho. It helps me I think. I do it on the ferry in salt air and it feels great for a while. Life's lots of little whiles. Join them up I guess.
Love and great wishes,
Karin
Not really sick with the HC but I had it for 37 yrs n the fibrosis was taking over. But, no, if I knew then what I know now, I would NOT of taken this poison ☠️
Xo 😘
Not really sick with the HC but I had it for 37 yrs n the fibrosis was taking over. But, no, if I knew then what I know now, I would NOT of taken this poison ☠️
Xo 😘
Hi everyone.... just joining this conversation. I did the Interferon/Ribavirin about 10 years ago. I could only do 6 months- though the Dr wanted me to do a full year. I simply could not. The 6 months did manage to get the Hep C undetectable- but then I began to go downhill from there. I was pretty healthy and active when I started treatment but have never felt the same since. I was actually diagnosed with Type 1 diabetes (at age 40 )shortly after the treatment. I never had any blood sugar problems or issues before the treatment. I also struggle with what many of you have described... the fatigue, brain fog, confusion, joint pain and inflammation.. basically, I feel like I'm just existing, not living anymore. I recently began researching lawsuits like you... here's hoping...
Anyway... just glad to be here among those who understand.
Jeri
Hi everyone.... just joining this conversation. I did the Interferon/Ribavirin about 10 years ago. I could only do 6 months- though the Dr wanted me to do a full year. I simply could not. The 6 months did manage to get the Hep C undetectable- but then I began to go downhill from there. I was pretty healthy and active when I started treatment but have never felt the same since. I was actually diagnosed with Type 1 diabetes (at age 40 )shortly after the treatment. I never had any blood sugar problems or issues before the treatment. I also struggle with what many of you have described... the fatigue, brain fog, confusion, joint pain and inflammation.. basically, I feel like I'm just existing, not living anymore. I recently began researching lawsuits like you... here's hoping...
Anyway... just glad to be here among those who understand.
Jeri
Hi everyone.... just joining this conversation. I did the Interferon/Ribavirin about 10 years ago. I could only do 6 months- though the Dr wanted me to do a full year. I simply could not. The 6 months did manage to get the Hep C undetectable- but then I began to go downhill from there. I was pretty healthy and active when I started treatment but have never felt the same since. I was actually diagnosed with Type 1 diabetes (at age 40 )shortly after the treatment. I never had any blood sugar problems or issues before the treatment. I also struggle with what many of you have described... the fatigue, brain fog, confusion, joint pain and inflammation.. basically, I feel like I'm just existing, not living anymore. I recently began researching lawsuits like you... here's hoping...
Anyway... just glad to be here among those who understand.
Jeri
There was a study I read about that a Chinese doctor did and in their findings they found out there was a percentage of people who went through Pegasus interferon with Ribavarin ended up with permanent type one diabetes. If I can find it again I’ll post the link. I too just like you years and years later feel like shit still after treatment. Never felt the same again. It changed everything.
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TO ALL WHOM MAY READ THIS POST, if y’all took interferon/ribaviron pls HAVE UR BONES CHECKED! my bones, for 10 yrs, have been so so painful and sore and my bone mineral density test ONLY SHOWED OSTEOPENIA…but after 5 yrs of begging for a bone marrow biopsy, the biopsy showed that MY BONEA R COMPLETELY HOLLOW!!! I’m talking critical numbers to where I was told that I can turn wrong n break a bone!!! Pls folks, I don’t want anyone else going thru this HELL! PLS GO TO UTUBE N PLUG MY NAME IN…Lisa DeStella to watch my video on MERCK pharmaceuticals
Hi-terrible! I had a bone marrow biopsy n come to find out in top of all the s/e from interferon, now my bones r basically hollow! I’m not making collagen I . This is what ur bones n vascularture is made of!! So terrible n so much pain
Hello Lisa,
Hope you're doing ok. That sounds dreadful for you, your bone marrow. Look I'm in Australia. Did 11 months in '07.
I Have earache always, tinnitus, nausea, travel sickness, joints, Blurry vision deterioration, weird fast rushes of heart beating and suddenly puffed out, migraines and other headaches, neck pain always, early menopause, IBS, seems I'm always straining something. My skin is dry bits, red and patchy. Itchy. No shine or thickness to my hair and no eyebrows, finger n toenails weirdly buckled n brittle. Moods and fogginess. I used to read so much, at every chance. Not now. Concentration missing. Bad light sensitivity need inside dark glasses often and tent the bed for darkness. Plus I hate being so lazy and unmotivated. Feel a bit like I'm unimportant. Perhaps we need one or two high profile sufferers. To gain attention.
I haven't been to lawyers but keep net searching.
I'm so sorry about your bones! Cant imagine that. Be careful. I hope there's a silver lining.
love Karin
I think if possible try not to think about it. At least as far as the thinking is negative for you. (tho I feel the thinking part is part of the result. A symptom of the lagging depression etc. )It won't go away but lawyers? They'd likely be offered more to fail (sorry I am cynical). Unless someone finds a 'do-gooder' who's appalled and also part of a huge successful firm I don't see a poss outcome for us. hope I'm wrong. USA probably has highest results in class action so maybe more likely to attract lawyers. Doubt other countries could join but who knows. There must be lists in every countries Dept Health of patients who used it. I read there was a payout in 2004 but must be wrong seeings I did it in 2007. I hope.
All the best. I'll definitely alert you if info pops it's head anywhere. I truely wish you well Lisa. I still find music the best soother. Do try sniffing some different aromatic essential oils. They also soothing. Sorry if that sounds trite.
Hi Karin!! Dang girl, it sounds like ur just as bad!! Have u had thyroid checked?? Sounds like me before my thyroid blew 2 yrs ago! Also, the problem w my bones is not making collagen type I which matches some of ur s/s! This is pure hell! I took pegatron n ribaviron in 2011 n been pure hell of since! I am a RN with a MPH n another degree n I can barely walk across the room anymore! Chronic fatigue syndrome, fibromyalgia, it died my immune system n I get monthly infusions of gamma globulins (antibodies) for life 😞 I have a utube video under my name which tells all my diseases from Merck pharmaceuticals meds! I hope u r well hun! The only thing that even helps me is to spark up a fatty 🥳 lol hope that doesn’t offend u!! Hope to hear back from u!! Lisa DeStella, Lexington Kentucky
Dear Lisa, not offended and concur.
Lisa I am not nearly as bad as you are. I can easily walk about but get puffed out n about. Tho I was very strong, rode racehorses once.
Did you know of a 2004 class action? Must be fictitious as we were more recent.
Also, mine was called Pegasys. Don't remember Merck? 1+ companies selling it?
In Australia, would we be in different suits if they went ahead?
I might start looking up who fought 'big pharma companies', 'tobacco, chemical companies in class actions.
(pardon abbreviations in rushing.)
The shits should definitely pay up as I'm sure the 6week tablet only course that was offered after our system was finished SO different to ours. It had to have been created for a reason. Ours made them so much more money. A month of the injections was around $6500 a month without the tablets that are taken with them.
They would not choose a cheaper drug to sell. We know they're notoriously money hungry biz according to years of news.
I know I have 'dangerously low iron', low D3- I use supplements. Years ago my doc said fibromyalgia too but not like yours. Fatty's aren't available from shops in Oz. It's an expense and random quality. I still love Australia. Oh, you'd better be careful of 'the virus'. if you believe in it. I was quite unwell after the immunisations.
I'll check out your YouTube when I get home Lisa. Looking forward to it.
Hey, were you very sick w HC before you started treatment? I wasn't and wish I hadn't joined.
Kentucky. I used to read books about Flicka when I was little. Bluegrass. Sounds nice. I really hope you find time to enjoy outdoors. Morning Sun is a charge. Fresh Air. I try that 20 breath intake stuff. Not the ice water tho. It helps me I think. I do it on the ferry in salt air and it feels great for a while. Life's lots of little whiles. Join them up I guess.
Love and great wishes,
Karin
Hi Karin!!! First, n foremost, pls have ur bone mineral density done asap! My vit D stays very low n that is sooo painful n turned out, via a bone marrow biopsy, my bones r hollow n the damage is critical!! My collagen cross link was: 0.005, which is non-existent causing major bone damage. I have 4 sets steel now n more to come!!
I have tried to find help but no one knows anything about post interferon syndrome! Did u happen to loose ur mind on this poison lol? I sure did like a month after the injections! My husband left me n I could practice nursing anymore cuz my patients were getting me sick (RN) n pneumonia 2-4 x a yr!
I was thinking about u last night lol n thought maybe I’ll try another lawyer n try a different strategy ugh 😩 sooo glad I met u!!
Not really sick with the HC but I had it for 37 yrs n the fibrosis was taking over. But, no, if I knew then what I know now, I would NOT of taken this poison ☠️
Xo 😘
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2 ReactionsHi everyone.... just joining this conversation. I did the Interferon/Ribavirin about 10 years ago. I could only do 6 months- though the Dr wanted me to do a full year. I simply could not. The 6 months did manage to get the Hep C undetectable- but then I began to go downhill from there. I was pretty healthy and active when I started treatment but have never felt the same since. I was actually diagnosed with Type 1 diabetes (at age 40 )shortly after the treatment. I never had any blood sugar problems or issues before the treatment. I also struggle with what many of you have described... the fatigue, brain fog, confusion, joint pain and inflammation.. basically, I feel like I'm just existing, not living anymore. I recently began researching lawsuits like you... here's hoping...
Anyway... just glad to be here among those who understand.
Jeri
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1 ReactionHi-glad u found us n ur not nuts lol I use to think I was until I found this site!
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2 ReactionsThere was a study I read about that a Chinese doctor did and in their findings they found out there was a percentage of people who went through Pegasus interferon with Ribavarin ended up with permanent type one diabetes. If I can find it again I’ll post the link. I too just like you years and years later feel like shit still after treatment. Never felt the same again. It changed everything.
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