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Organ Donation and Transplant: What is Your story?

Transplants | Last Active: 5 days ago | Replies (94)

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@gingerw

@tream01 Welcome to Mayo Clinic Connect! I'm glad you have been reading the posts and decided to let us know about your own health journey. So many of us have a multi-pronged story, and getting it down onto a post can be therapeutic, don't you agree?

My husband had a kidney transplant in 2016, and the trepidation/excitement/logistics definitely were part of his story, also. As everyone says, "baby step" and reading the experiences here can go a long way to calming you down. Definitely keep a journal if you can. You can write about your feelings, have another section for questions, and your doctors were wise to tell you to err on the side of caution when it comes to letting them know about questions you have. They are part of your medical team, but also support you! I have found that most doctors like an involved patient. It's difficult to put ourselves first, yep, I've been there, done that!

Does your team have information about your CKD? Cause and what may be in the treatment future for it?
Ginger

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Replies to "@tream01 Welcome to Mayo Clinic Connect! I'm glad you have been reading the posts and decided..."

Thank you Ginger, it is very helpful to know that I’m not alone. As for the CKD, no one has been able to determine the cause. I worked with an excellent nephrologist at Hopkins when I found out that I had this issue. He wasn’t able to nail down the cause. With my health history, there are a number of possible factors. As far as the CKD is concerned, he wanted to concentrate on keeping it from getting any worse. I had to switch doctors when I came to New York but my current nephrologist agrees with that approach. So far, it has advanced from stage 2 to stage 3, but very slowly. I have not required any treatment or medical intervention so far. Fingers crossed!