Want to talk to others with fibromyalgia: What symptoms do you have?

I am so sorry for what you are going through! I know getting someone to listen to you about your symptoms is the hardest part. Can you get your doctor to refer you to a neurologist ?
Not trying to tell you what you might have, but I have a friend with MS and you have a lot of the same symptoms. Of course there are many great treatments for it and she was diagnosed with it 10 years ago and lives a pretty active life:)
I wish you luck getting to the right doctor who will really listen to you !
Hugs:>

Hi Flor, were you checked for ankyloglossia, or tongue-tie? It can affect facial, jaw, and neck muscles.

I was diagnosed with fibromylagia in January 2022 and it turned out to be wrong. It was difficult convincing many doctors to do a follow-up cervical spine MRI but after having EMG/NCV studies which showed signs of severe nerve damage and stenosis, it was done. I have severe stenosis bilaterally at many levels. Many other symptoms were chalked up to FM and went untreated. So now I play catch-up again, physically and financially. Keep looking for answers.

I was diagnosed with fibromyalgia about thirty years ago and I managed to do all the things that I had always done. The past two years have been torture following a respiratory virus in mid February 2020. I am under going testing to see if it’s something other than fibromyalgia. I am scheduled for a Medial Branch Block in two weeks. While I have been surfing the net I came across an article that may be of interest on fibromyalgia about new treatments for fibromyalgia.
integrativepaininstitute.com

I was diagnosed with Fibromyalgia, do the symptoms
get worse before they are balanced out you know more manageable?
All I am doing currently is medications and wonder if I should be doing like physical therapy ect.... and do I ask my doctor for a specialist to help my daily life?

any thoughts
Thank You

I have okay days and not so okay days. I exercise in a pool and try to stretch.

I think everyone is different with what works and what can cause a flare up. I have found physical therapy to be helpful but I only go once a week now and have found a group of physical therapists that don’t push me too far too fast. In the past, I tried going 3 times a week but that aggravated my symptoms and when I mentioned that to the therapist, she said she had been a therapist for 30 years and that has never happened. So, you have to find the right people to work with you. Movement is medicine, I have found, but it is a delicate balance of figuring out what works and what doesn’t, which takes time and patience.

Progesterone 30 min before bed has been a game changer!

I am on Gabapentin 600 mg and Trazodone at bedtime that helps immensely with sleep and pain. Hope you get some relief.

Are you in perimenopause/menopause? Asking because I’m experiencing early menopause after a medical emergency a couple years ago. My sleep has been awful since then and I started hormone therapy, but it’s not helping my sleep. Need to tweak the meds…I can’t compete with menopause on top of fibro and eds.

I am in menopause. I am getting my levels adjusted for estrogen, progesterone, and testosterone. I had to lower the progesterone and that helped