1. < Osteoporosis & Bone Health

Bone Loss Drug Reclast

Posted by seniorlady @seniorlady, Jul 24, 2016

Has anyone had the injection and what have been the results...side effects or not? I am to start on this later this week and am considering not doing it because of possible side effects....the idea that the bone cells causing the bone loss (due to aging) will be changed by the drug scares me.

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windyshores | @windyshores | May 11, 2022
In reply to @helenrose "I had the infusion about 6 weeks ago. I have had increased joint pain. I would..." + (show)
@helenrose

I had the infusion about 6 weeks ago. I have had increased joint pain. I would not recommend it unless it is your last resort. I had fallen and fractured my hip and about 4 months later had fallen again. I did not hurt myself at all on the second fall. However it scared me so I did the reclast. I think working on balance, taking bone supplements, etc. can help. Now alot of people have no side effects so you might be one of those. I have a friend who had none, and another who had some minor joint pain that did not last.

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@helenrose have you considered a bone-growing drug like Tymlos, Forteo or Evenity? I am so sorry you fractured your hip. You are right about working on balance: I do tai chi.

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helenrose | @helenrose | May 11, 2022

Many years ago I did forteo and it helped increase bone density however I was told I could not do that again due to causing cancer in rats. I have not heard of tymlos. Will look it up. Thanks.

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1 reply
rmc7 | @rmc7 | May 12, 2022
In reply to @echolsleslie "I received the reclast infusion 1 month ago for 5 days I had chills, sweats and..." + (show)
@echolsleslie

I received the reclast infusion 1 month ago for 5 days I had chills, sweats and body aches. Day 5 felt better and then experienced eye Inflammation and had to go to the doctor. One month in I have the worst headaches. I am healthy, not on any meds exercise 5 days a week but had bone loss and this was recommended by my doctor. I am shocked it has been this bad and never want it again ! Has anyone had these types of side effects I am desperate.

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I am having my first Reclast in 2 weeks, I’m really praying I don’t go through what you did! I can tell you that the very same side effects you had have been reported in the Facebook Reclast group, you are not alone. I hope by now you are fully recovered and that the infusion was worth it. I’m very fearful of the med and even more fearful of being without it! I just believe I would have never been in this predicament had My HRT NOT been stopped! I had no history of cancer, stroke, or osteoporosis in my family I believe many women and Drs were pressured by big Pharma and the hysterical media and now are paying the price.

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windyshores | @windyshores | May 12, 2022
In reply to @helenrose "Many years ago I did forteo and it helped increase bone density however I was told..." + (show)
@helenrose

Many years ago I did forteo and it helped increase bone density however I was told I could not do that again due to causing cancer in rats. I have not heard of tymlos. Will look it up. Thanks.

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@helenrose That two year time limit on Forteo has been lifted. Just fyi. Tymlos is a similar drug but newer and the two year limit on Tymlos has not been lifted yet. You could do either.

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sarsapkin | @sarsapkin | Dec 26, 2023

I am approaching my 3 month date post receiving Reclast IV.
Set up to be an annual thing, this was my first.
Oral weekly doses of Fosamax gave me esophageal problems after 3 months, so I tried Reclast.
I got bilateral groin deep aching within a few days that was suppose to go away no longer then 2 wks or a month.
Now 3 months later I still have it. I am not happy about this. Maybe this will all turn out find with some improvement in my Bone density, too early to know.
In the meantime, I have a heating pad to my groin and take 2,000 MG of tylenal / day.
Yes I take Ca++ and Vit. D3.
I walk but the bone aching doesn't increase my desire to want to take walks .
Doctor said we will decide next year what to do next for my osteoporosis in hip.
Note:
My blood Calcium level was taken 5 mo. Before the IV Reclast. It has always been within normal levels.
Signed, a bit discouraged

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1 reply
Moderator
Justin McClanahan, Moderator | @JustinMcClanahan | Jan 5 10:47am
In reply to @sarsapkin "I am approaching my 3 month date post receiving Reclast IV. Set up to be an..." + (show)
@sarsapkin

I am approaching my 3 month date post receiving Reclast IV.
Set up to be an annual thing, this was my first.
Oral weekly doses of Fosamax gave me esophageal problems after 3 months, so I tried Reclast.
I got bilateral groin deep aching within a few days that was suppose to go away no longer then 2 wks or a month.
Now 3 months later I still have it. I am not happy about this. Maybe this will all turn out find with some improvement in my Bone density, too early to know.
In the meantime, I have a heating pad to my groin and take 2,000 MG of tylenal / day.
Yes I take Ca++ and Vit. D3.
I walk but the bone aching doesn't increase my desire to want to take walks .
Doctor said we will decide next year what to do next for my osteoporosis in hip.
Note:
My blood Calcium level was taken 5 mo. Before the IV Reclast. It has always been within normal levels.
Signed, a bit discouraged

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Hello @sarsapkin, welcome to Mayo Clinic Connect. Sorry to hear you are a bit discouraged. Here are some more Reclast discussions to explore, https://connect.mayoclinic.org/group/osteoporosis/?search=reclast#discussion-listview.

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