Thank you so much for sharing your story about your experience with your father. I have been reading posts for a couple of weeks now, and would like to thank everyone that has contributed to the site. This is my first contribution and I hope that my story is helpful to someone else. - I was diagnosed with PBC more than 20 years ago. Thanks to medication, my disease did not progress much for a very long time. Up until about a year ago I was prepared to live out the rest of my life with my original equipment liver and treat symptoms as they came along. Since that time, in addition to CKD, I have been diagnosed with both Gastroparesis and a malignant NET in my stomach. Fortunately, my doctor was able to identify and remove the tumor before it had an opportunity to grow or spread. Just a few months ago, my doctor determined that my numbers were indicative of a rapid escalation of my PBC. It was time to meet the transplant team. So, as you can imagine it’s been a rather stressful year! I am currently awaiting word on a live donor candidate so I can move forward sooner. I understand the wait on the list can be rather long, especially in New York. I have a number of symptoms that could be related to any one of these issues or none of them. It has taken me a while (and a good therapist) to learn to put myself first. I still have a difficulty at times deciding whether I should alert my doctors when something new arises for fear that I will be wasting their time. But I am working on that, and my doctors agree that I should air on the side of caution regardless of the issue. I believe I read I read another post earlier today where someone described the fear, excitement, and anxiety at every turn. It is very comforting to know that others are experiencing the same myriad of emotions. I am very happy with my doctors and my transplant team, so I am trying to be patient, take care of my needs, and get through this process step-by-step. Sorry for the “novel”, and thank you again for sharing your experiences with me!