← Return to Organ Donation and Transplant: What is Your story?
DiscussionOrgan Donation and Transplant: What is Your story?
Transplants | Last Active: 5 days ago | Replies (94)Comment receiving replies
Replies to "Hi there! Facing an organ transplant can be a scary proposition. I feel like anybody facing..."
@windwalker, how is the evaluation going? Will you go home for the weekend or do you stay at Mayo Clinic for the full 2-week evaluation process?
You have a wonderful attitude and approach! I am a heart/lung recipient. I do not have HLA. But I was very active prior to my transplant and am happy to report that one year later I am busy, fit and loving life. 5 months after transplant I was back riding my horses and today I walk my dog 30-60 min daily (depending on the weather), lift weights and do yoga. Trying to keep yourself as fit as possible prior to transplant is a great approach. Just like any surgery, the more in shape you are going in, the better the recovery. I couldn’t walk much more than a very slow 10-15 min prior to transplant.
I’m not going to lie though, the first 2 months post transplant I had NO muscles and no strength or stamina. And I lost a LOT of weight. Apparently common for lung transplants as we all laughed in respiratory rehab that we were back at HS weights. But months 4 thru 9 I made significant progress.
Good luck to you! And celebrate the small victories every day. That helped me a lot. I even wrote them down in my journal at night so I could look back and appreciate how far I had come.
Jackie