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Grover's Disease: What works to help find relief?

Skin Health | Last Active: Dec 6 3:31pm | Replies (2018)

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@gardeningjunkie

There are so many variables.
I drank the blended fresh or frozen cilantro for about 6 months. It only took about 3 months to know for sure it was dormant, but it took months for the masses of scabs to fall off, at that time the scabs were not active, painful or itchy. If I scratched them off, the scab would return. They simply wouldn't heal. Yet the itching and pain was gone. Just sensitivity was present.
Other then the rash I got after the Shingrex vaccinne my skin was inactive for about 2 years then around mid Dec 21 I knew it was starting. I got the thousand of tiny, tiny non irrupted bumps under my upper back torso skin and a strange familiar sensation, but not yet itchy or painful, just a tingling. I did get a few random active GD papuales which stung around my lower torsos, only about 5 or 6.
I started up on the fresh or frozen cilantro again for about a month, daily. After the month all traces gone. So I this was not a full blown activation of the GD.
Like all of us our reaction to cilantro varies. Perhaps you should do as the doctor suggests and go off the oil monitoring your symtoms?
I do want to point out, at first I tried the capsule and oil form for a few weeks before I decided to try the fresh or frozen. I noticed no improvement until I took the fresh and after about 3 months of fresh also added the convenience of fresh frozen a few days a week.
You do have my sympathies, I'm so sorry that it's becoming active again for you. After a few clear years I thought I had beat it, now I accept there is no cure. That's why the Transcient Acantholytic Dermatosis- transcient meaning it comes and goes.
I did find splashing with Witch Hazel to be refreshing, even though it stung the broken papuales. It's supposed to be anti-bacterial, but I can't say it made a difference helping it go into remission. No prescription ever made any difference. I do know from blood testing I have multiple metal allergies, so perhaps with cilantro chelating my blood thus reducing the metals in my body my system is less inflamed.
Heavy metals are also related to Alzheimer's and Parkinson's diseases. Google it, many sites also consider heavy metals tied into GD. So using herbs to remove these heavy metals can have added benefits other then just for GD.

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Replies to "There are so many variables. I drank the blended fresh or frozen cilantro for about 6..."

Thanks for your input. I did the fresh-frozen smoothies for about two years, every day. The thought of going back to them makes me gag. Not something I look forward to.