Hello everyone. John sent me this article: https://www.healthrising.org/blog/2014/06/15/immersed-found-way-decades-trying-help-allodynia-nerve-pain/?msclkid=d6b06c53b86c11ec91c8923fedb80032
Has anyone tried using a neutral temperature water therapy pool to treat their allodynia? This sounds so promising but I'm wondering if this is real. Would anyone know of someone (doctor, clinic) who could direct us how to proceed, what the temperature of the water needs to be and how long you would need to be in the pool, etc. or a place to find more information? Thank you so much for your input!
Has anyone used epsom salt for there hypersensitive areas ?
There is a study on it on pub medicine Evidence of the role of magnesium in analgesic adjuvants against a variety of acute and chronic pain has accumulated over decades
I tried it with desensitization and it helped . I also had a lot of IVIG .
Has anyone used epsom salt for there hypersensitive areas ?
There is a study on it on pub medicine Evidence of the role of magnesium in analgesic adjuvants against a variety of acute and chronic pain has accumulated over decades
I tried it with desensitization and it helped . I also had a lot of IVIG .
Hi. I'm glad you have something that works for you. Did you bathe in the Epsom salt to obtain relief? What kind of allodynia do you have and what type of desensitization did you try? Is this related to the neutral temperature therapy pool 6mentioned in the article? Thank you.
Good evening All,
I am frustrated by the lack of information I can find about allodynia. I imagine that there may be someone on the Mayo Connect forum who may have a contact at the Mayo Clinic or elsewhere who could provide real answers to my questions about allodynia. I am willing to self pay for the visit if insurance would not allow. Does anyone know of a doctor that I can make an appointment with who can provide straight and real answers about allodynia and treatment options, etc. I am tired of going around in circles. Please no videos.
Thanks again. I would appreciate it...I'm getting desperate.
Has anyone used epsom salt for there hypersensitive areas ?
There is a study on it on pub medicine Evidence of the role of magnesium in analgesic adjuvants against a variety of acute and chronic pain has accumulated over decades
I tried it with desensitization and it helped . I also had a lot of IVIG .
Hello @fl6847 and welcome to Mayo Clinic Connect. Thank you for joining this discussion to share something that has been helpful to you. Can you share a bit more about how you used it and the frequency?
I used the epsom salt in a basin for arms and feet and sometimes put in a bath 3-5 times a week.
This protocol is from another allodynia webpage . I used a feather instead of a towel . IT WILL HURT
Use lotion to gently rub each hypersensitive section of your body for 2 minutes each. If the pain is in the entire legs, this means two minutes rubbing the lower left leg, two minutes rubbing the upper left leg, two minutes rubbing the lower right leg, and two minutes rubbing the upper right leg.
After several days, when this no longer causes discomfort, use a soft pillowcase to rub each area for 2 minutes. Do this daily until it no longer hurts.
When this no longer causes discomfort, use a soft towel to rub each area for 2 minutes. When the towel no longer hurts,
Your supposed to have some else do the same sequence but I didn’t.
I have found that being in water like a pool does help as long as the water temp is good . With MS Hot is not a good thing .
Hello Everyone,
I am interested in taking my husband to the Mayo Clinic in Rochester for an evaluation of his allodynia caused by fibromyalgia. Would anyone know of a particular doctor or department that would specialize in this area so we can contact them and make an appointment and other arrangements?
Thank you so much for your input. I would very much appreciate if someone would let me know as soon as possible.
Hello, Does anyone use (or used in the past) Cymbalta for to help with allodynia pain? My doctor recently prescribed Cymbalta. I know it takes a long time until it becomes effective but would rather not waste such a long time and put up with side effects for a drug that won't work for the burning pain. If you have used Cymbalta or are currently using it, would you please share your experience with this drug, whether it is effective for allodynia, the dose that was therapeutic for you, and whether the side effects you experienced went away. Your help would be most appreciated. Thank you!
Hello, Does anyone use (or used in the past) Cymbalta for to help with allodynia pain? My doctor recently prescribed Cymbalta. I know it takes a long time until it becomes effective but would rather not waste such a long time and put up with side effects for a drug that won't work for the burning pain. If you have used Cymbalta or are currently using it, would you please share your experience with this drug, whether it is effective for allodynia, the dose that was therapeutic for you, and whether the side effects you experienced went away. Your help would be most appreciated. Thank you!
Cymbalta did not work for me at all. Only gave me horrible side effects. I have poly neuro and arachnoiditis and just want to die sometimes because it is too much for me to bear, let alone the horrible side effects of that drug. Headache and eye ball pain constant, and loss of concentration, and unable to construct sentence,s.
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Hello everyone. John sent me this article: https://www.healthrising.org/blog/2014/06/15/immersed-found-way-decades-trying-help-allodynia-nerve-pain/?msclkid=d6b06c53b86c11ec91c8923fedb80032
Has anyone tried using a neutral temperature water therapy pool to treat their allodynia? This sounds so promising but I'm wondering if this is real. Would anyone know of someone (doctor, clinic) who could direct us how to proceed, what the temperature of the water needs to be and how long you would need to be in the pool, etc. or a place to find more information? Thank you so much for your input!
Has anyone used epsom salt for there hypersensitive areas ?
There is a study on it on pub medicine Evidence of the role of magnesium in analgesic adjuvants against a variety of acute and chronic pain has accumulated over decades
I tried it with desensitization and it helped . I also had a lot of IVIG .
Hi. I'm glad you have something that works for you. Did you bathe in the Epsom salt to obtain relief? What kind of allodynia do you have and what type of desensitization did you try? Is this related to the neutral temperature therapy pool 6mentioned in the article? Thank you.
Good evening All,
I am frustrated by the lack of information I can find about allodynia. I imagine that there may be someone on the Mayo Connect forum who may have a contact at the Mayo Clinic or elsewhere who could provide real answers to my questions about allodynia. I am willing to self pay for the visit if insurance would not allow. Does anyone know of a doctor that I can make an appointment with who can provide straight and real answers about allodynia and treatment options, etc. I am tired of going around in circles. Please no videos.
Thanks again. I would appreciate it...I'm getting desperate.
Hello @fl6847 and welcome to Mayo Clinic Connect. Thank you for joining this discussion to share something that has been helpful to you. Can you share a bit more about how you used it and the frequency?
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1 ReactionI have tactile and Mechanical allodynia from MS .
I used the epsom salt in a basin for arms and feet and sometimes put in a bath 3-5 times a week.
This protocol is from another allodynia webpage . I used a feather instead of a towel . IT WILL HURT
Use lotion to gently rub each hypersensitive section of your body for 2 minutes each. If the pain is in the entire legs, this means two minutes rubbing the lower left leg, two minutes rubbing the upper left leg, two minutes rubbing the lower right leg, and two minutes rubbing the upper right leg.
After several days, when this no longer causes discomfort, use a soft pillowcase to rub each area for 2 minutes. Do this daily until it no longer hurts.
When this no longer causes discomfort, use a soft towel to rub each area for 2 minutes. When the towel no longer hurts,
Your supposed to have some else do the same sequence but I didn’t.
I have found that being in water like a pool does help as long as the water temp is good . With MS Hot is not a good thing .
Hello Everyone,
I am interested in taking my husband to the Mayo Clinic in Rochester for an evaluation of his allodynia caused by fibromyalgia. Would anyone know of a particular doctor or department that would specialize in this area so we can contact them and make an appointment and other arrangements?
Thank you so much for your input. I would very much appreciate if someone would let me know as soon as possible.
Hello, Does anyone use (or used in the past) Cymbalta for to help with allodynia pain? My doctor recently prescribed Cymbalta. I know it takes a long time until it becomes effective but would rather not waste such a long time and put up with side effects for a drug that won't work for the burning pain. If you have used Cymbalta or are currently using it, would you please share your experience with this drug, whether it is effective for allodynia, the dose that was therapeutic for you, and whether the side effects you experienced went away. Your help would be most appreciated. Thank you!
I’m taking Cymbalta. It has helped. I don’t have any side effects that I have noticed. I take 30mg morning and night.
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1 ReactionCymbalta did not work for me at all. Only gave me horrible side effects. I have poly neuro and arachnoiditis and just want to die sometimes because it is too much for me to bear, let alone the horrible side effects of that drug. Headache and eye ball pain constant, and loss of concentration, and unable to construct sentence,s.
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Hug
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