Connect
← Return to Parkinson's disease will be curable with cortisol
Discussion
Parkinson's disease will be curable with cortisol
Parkinson's Disease | Last Active: Jul 27, 2023 | Replies (31)Comment receiving replies
I haven’t been on Mayo Connect for awhile. I guess it’s because I have been doing really well until now. A very unwise and selfish thing to do, I might add. So now, of course, I return when I need help.
Anyway, I have just been taking 1 Sinemet tablet 3x a day for over 5 years now. I guess I am lucky because I know quite a few people who take a lot more, but it turns out that I’m not really so lucky after all. About 4 months ago I started noticing that the muscles in my thighs would spasm sometimes while I was sitting once maybe twice and then stop. It didn’t hurt, but was bothersome. As time has gone on it has become frequent when I am sitting with shorter periods of rest in between. Standing and walking are no problem. My doctor said it was dyskinesia and it is because my body is so sensitive to the Sinemet. He prescribed Amantadine, but it hasn’t worked. Has anyone else had this problem and/or been given Amantadine?
Appreciate your comments
Thanks
Replies to "I haven’t been on Mayo Connect for awhile. I guess it’s because I have been doing..."
I was on Amantidine at the beginning and that really helped my gait and stiffness. Unfortunately 2 weeks later I developed severe skin rashes all over so that had to be stopped. Was also on Azilect prior to Amantidine, that helped, but it also caused skin rashes, obviously that was stopped. I am now on Stelavo, Primaxine , also Neupro patch ; they don't work that well but I can function. They are considering doing DBS on me, but decision has not been made.
Does anyone have experience with DBS and would like to share it?
Connect
Amantadine made me very anxious, and I could not sleep. But it really helped with the PD symptoms. I wish I could take it. If it works for you without nervousness, take it.