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Fibromyalgia..Is It an autoimmune disease?
Fibromyalgia | Last Active: 2 days ago | Replies (74)Comment receiving replies
No it's not. I've have it since being diagnosed in 1984, and a day doesn't go by where it doesn't hurt. But I have always ignored it because I have other problems, worse issues like ms, sjogrens which have left me with 5 teeth & my rheumatologist has made it my primary disease. This because sjogrens can rupture your organs. Also 4 rare diseases.
But all my life my husband thought I was complaining to get attention. When I had bronchitis so bad & was coughing awful & the pain he yelled at me. Turned out a later MRI for something else showed 2 cracked ribs. So this is what I had to go thru with him. Until around 1988 he saw a documentary on fibro & he was begging me to watch, I said no I already knew everything. So he calls me over with tears & apologizing for all those years, he never knew. Too little, too late. That's the problem with these type of syndromes. So I always blamed everything on the ms, when I knew it was the fibro.
Replies to "No it's not. I've have it since being diagnosed in 1984, and a day doesn't go..."
@anniemaggie - I have an idea of what you have been going through with your husband.
In recent years I have had a lot of GI problems, most related to autoimmune illness. I have had Fibromyalgia for years too.
It is hard when nobody understands what your life is like- daily pain or discomfort- maybe one or two “ normal “ days a year…
Even my adult children thought I was just whining.
Part of my GI illness was Sjögren’s like symptoms - dry mouth and eyes. My upper incisors became see-through and I have now crowns hiding and protecting them.
By the way- after treatment with immunosuppressive meds, my GI symptoms improved so much and I was producing saliva again- drooling actually now.
You are not alone.
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@anniemaggie What a difficult time you have had. Are you able to talk about this with anyone locally? It must be so hard to keep it all in. Do you think your husband would go with you?
Are any of your autoimmune diseases under control? I’m hoping that you’ve found a good doctor. Again, would your husband accompany you to a doctor appointment?