Just diagnosed with Endometrioid Adenocarcinoma: What to expect?

@naturegirl5 ,

I totally understand how it is to get out of our routine. Thank you for thinking about me. That means so much to have your support.

I am feeling pretty good. I still get tired so easily. Maybe it is from getting older, maybe it is normal after surgery. I really don't know.
I mowed and trimmed my yard. It is close to 2 acres and something I enjoy immensely. Yes, our grass is green and has been mowed a couple times, the daffodils are all bloomed out and the tulips and forsythia are gorgeous. It was close to 80 degrees today. Next week is supposed to be in the 50's again and last week we had snow, so it has been quite a mix.

I understand your nervousness. This is such an ordeal to go through. I honestly had no idea how someone in this situation could feel.

I look forward to hearing about your appointment. You will remain in my thoughts and prayers!
I hope your weekend is good as well and that you get some nice warm days soon. They are good for the soul.
Take care my friend!

@cmb2022 We leave for Mayo Clinic tomorrow. It's a long drive but we have done it so many times that we have our favorite places to stop. This time of year I like to stop in Necedah, WI where there is a a national wildlife refuge. Since we into Spring bird migration I'll walk a few trails and go up a tower to see what's out on the water. In 2020 I saw Whooping cranes! They migrate with Sandhill cranes and I did more than one double take before I realized I was looking at Whooping cranes. That was a first for me.

We had temperatures today in the 70's and it really felt like Spring. I poked around in my garden bed and found the crocus and hyacinth that will be in bloom within the next week. I find "working" in the yard to be meditative and satisfying. Do you feel like that on your two acres?

I'm often fatigued too. I wonder if it's still from the radiation therapy, cancer, or getting older. Or all of these. It seems like not all that long ago I could stay out in my yard all day and do gardening chores but not anymore. I have decided though that I'm done with raking leaves. Our house is in the woods so no one sees our yard anyway and I don't need a pristine setting. I figure the bugs, birds, and other wildlife will continue to enjoy those damp leaves on the lawn.

I hope you have a good week, my friend.

Has anyone been diagnosed with endometrial adenocarcinoma with squamous metaplasia?

Hi, 56 years old, white female, obese, diagnosed with endometrial adenocarcinoma Figo 1 with spots on squamous modular metaplasia. Been bounced around to different doctors trying to get that hysterectomy they said I needed the day I was diagnosed. Well with the pandemic , my own mental health issues , fear of the unknown and not finding one doctor that will advocate for me and make me feel important and cared for....it's been 2 years with no treatment, no surgery, NOTHING!!! I am a mix of passed off and soon scared from all the time that's passed without any care...I even had a doctor tell me that he didn't want to work with me because I missed appointments with the other doctors so he wasn't going to waste his time. Why am I being rejected by a doctor who took an oath to care for patients especially since it has been 2 years? Anyone got any suggestions ? I just feel like I'm not important enough for anybody to care. I've even contemplated suicide a few times. Help please...thanks

@springangel, first of all, welcome to the Gynecological Cancer group on Connect. This is a place that you can meet others living with endometrial adenocarcinoma. Pull up a chair and join our circle. Imagine that I just poured you a cup of tea.

I'd like you to meet other members like @naturegirl5 @cmb2022 @miriam57 @rose53 @ejohn @andrea69 and @valentinaz. See? You are not alone.

Like you, Rose was very frightened when she first posted here. I can see that your worry has left your frozen or paralyzed to take action sometimes. That's okay. You're ready to take action now. Let's see how we can help you.

Have you considered getting a second opinion at a major cancer center?

Hi Springangel,
It is scary and nobody gets it better than us.
I have been fighting stage 1A cancer since May of 2020.
Ask away,
One foot in front of the other.
And I always suggest a 2nd opinion.
Not sure where your going now

Yes and in the last 2 years I have done that with no progress. I first went to ucr women's health, then Loma loinfa and lastly the city of hope which was a disaster. The important thing here is NOBE of those places did any tests of ANY kind!! After two years don't ya think a blood test, CT scan of my pelvis and chest and another biopsy to just be sure of where my cancer is at this point? I'm so unhappy and disgusted at the lack of care these places DONT HAVE for me and my situation! 2 years is a long time to go without any any any treatment! Sorry for ranting but I'm fighting for my life, in my mind anywYs

I second @colleenyoung in welcoming you to this space, as well as her suggestion of seeking another opinion. I'd also encourage you to find support outside of medical providers to help you advocate for yourself. While we should absolutely expect compassion and respect from our health care providers, we might have more success in feeling important and cared for if we look to our friends, family and/or support networks. I hope you have those, and can ask for help from those who care for you and are close to you. For virtual care and suggestions, you have folks here. I wish you the best!

Just read your post.
It is important to keep the appointments. Not sure where you live, but get to a major hospital/ cancer if your insurance will cover it

And , BTW, thank you for responding so quickly . I didn't think anyone would reply. Thanks for the kind words.