Liver transplant - Let's support each other

Well, I have a date in Phoenix. My first VERY full day of appointments is April 18th. We’ll leave a couple days earlier so we can check in and get settled. Looking like at least a full week, likely a little bit longer to complete the assessment process at Mayo. They said that with my MELD score where it is they will more than likely ask us to stay in hopes of a transplant soon thereafter. I have a few more tests out here for them then we put the sails up and go. I’ll update when I can, and thank you all for not only being here but for your support. Be well and safe until then…

Bryan

Well, I have a date in Phoenix. My first VERY full day of appointments is April 18th. We’ll leave a couple days earlier so we can check in and get settled. Looking like at least a full week, likely a little bit longer to complete the assessment process at Mayo. They said that with my MELD score where it is they will more than likely ask us to stay in hopes of a transplant soon thereafter. I have a few more tests out here for them then we put the sails up and go. I’ll update when I can, and thank you all for not only being here but for your support. Be well and safe until then…

Bryan

Well, I have a date in Phoenix. My first VERY full day of appointments is April 18th. We’ll leave a couple days earlier so we can check in and get settled. Looking like at least a full week, likely a little bit longer to complete the assessment process at Mayo. They said that with my MELD score where it is they will more than likely ask us to stay in hopes of a transplant soon thereafter. I have a few more tests out here for them then we put the sails up and go. I’ll update when I can, and thank you all for not only being here but for your support. Be well and safe until then…

Bryan

@rrichardparker, I want to re-welcome you to Connect. It has been a while since I have seen you in the transplant group. I am also a transplant recipient. I joined Mayo Connect because I wanted to meet and to learn from other transplant patients. I learned that as a recipient, I can share my own experiences to help others along their own journey. I have a feeling that you have learned a lot from your transplant, as well as how to manage your self care for 6 post transplant years.

Are you interested in supporting others who are like yourself?
I invite you to look thru the transplant discussions that are happening because there have been a lot of new members and conversations. You are always welcome to join in anywhere, with your own comments, questions, and helpful suggestions.
How can I help you get started?

Hola RoseMary, gracias por tus comentarios.
Soy Rogelio de la torre, mexicano y vivo en la ciudad de Querétaro, México.
Hace un año y medio me detectaron un tumor neuroendócrino primario en intestino con metástasis en hígado etapa IV y durante ese tiempo he recibido diferentes tratamientos para evitar que el tumor en el hígado siga creciendo, sin embargo es muy probable que requiera de un transplante de hígado a mediano plazo (seis meses).
Quisiera saber de personas que hayan vivido algo similar; cáncer de hígado y posteriormente trasplante del mismo.
Desconozco los efectos de los medicamentos inmunodepresores que suministran para evitar el rechazo del hígado transplantado y el tiempo que se puede vivir con un hígado transplantado.
Desconozco si hay estadísticas del promedio de vida en personas con esta afección, ojalá alguien pudiera aportar información al respecto.
Deseo de todo corazón que puedas vivir muchos años mas con una excelente calidad de vida!

Muchas Gracias!

Hey there! Sorry so long to get back to you, last week we were here going through the plethora of various appointments they had for me, and it was a busy week. This week we were on pins and needles waiting to hear from Mayo if they were going to list me or if we were going home. Got the call late afternoon yesterday that they were going to list me and wanted me to stay! So this morning got my labs for listing and it is now official. I am now on the clock and waiting for the call, we’ll see how long it takes but extremely thankful for being listed and for the contact with everyone here in the beginning of this process.

All my best, wish me luck!

Bryan

Hey there! Sorry so long to get back to you, last week we were here going through the plethora of various appointments they had for me, and it was a busy week. This week we were on pins and needles waiting to hear from Mayo if they were going to list me or if we were going home. Got the call late afternoon yesterday that they were going to list me and wanted me to stay! So this morning got my labs for listing and it is now official. I am now on the clock and waiting for the call, we’ll see how long it takes but extremely thankful for being listed and for the contact with everyone here in the beginning of this process.

All my best, wish me luck!

Bryan

Hello all!

I am just getting up after my first night’s sleep in our hotel since surgery! After I messaged you that I was listed two weeks ago, I received two offers. On the first I got to the hospital and was ready to go in pre-op when I was told that the donor did not progress fast enough. 1st dry run, which I expected might happen. The next day I received another that I found out the follow morning was also off. So, headed to Mayo that morning last Friday for my final labs of the week. While checking in I got another call from procurement asking me to instead go the the hospital to get admitted. It was finally a GO!

I was discharged on day four post op! My new liver has kicked in like it was where it needed to be to keep me alive and well. So far, all my numbers have have balanced or on their way to being where they need to be.

Sorry for being so long winded but, I can’t even explain how happy, incredible, fortunate and blessed I am after this life changing series of events. To be laying here in bed five days since transplant is an absolute miracle in my life. I pray for the donor and his family daily and will cherish and nourish my new liver like no other. The donor and his family have given me a new life that means more to me, my wife, my family and friends than my words can even begin to describe. I am truly blessed. This experience has changed me in ways that I could ever explain.

Again, thank you for your support and being there for me from the beginning. I’ve never met any of you but you will all be remembered. Thank you.

Bryan