Hello Lisa,
Hope you're doing ok. That sounds dreadful for you, your bone marrow. Look I'm in Australia. Did 11 months in '07.
I Have earache always, tinnitus, nausea, travel sickness, joints, Blurry vision deterioration, weird fast rushes of heart beating and suddenly puffed out, migraines and other headaches, neck pain always, early menopause, IBS, seems I'm always straining something. My skin is dry bits, red and patchy. Itchy. No shine or thickness to my hair and no eyebrows, finger n toenails weirdly buckled n brittle. Moods and fogginess. I used to read so much, at every chance. Not now. Concentration missing. Bad light sensitivity need inside dark glasses often and tent the bed for darkness. Plus I hate being so lazy and unmotivated. Feel a bit like I'm unimportant. Perhaps we need one or two high profile sufferers. To gain attention.
I haven't been to lawyers but keep net searching.
I'm so sorry about your bones! Cant imagine that. Be careful. I hope there's a silver lining.
love Karin
I think if possible try not to think about it. At least as far as the thinking is negative for you. (tho I feel the thinking part is part of the result. A symptom of the lagging depression etc. )It won't go away but lawyers? They'd likely be offered more to fail (sorry I am cynical). Unless someone finds a 'do-gooder' who's appalled and also part of a huge successful firm I don't see a poss outcome for us. hope I'm wrong. USA probably has highest results in class action so maybe more likely to attract lawyers. Doubt other countries could join but who knows. There must be lists in every countries Dept Health of patients who used it. I read there was a payout in 2004 but must be wrong seeings I did it in 2007. I hope.
All the best. I'll definitely alert you if info pops it's head anywhere. I truely wish you well Lisa. I still find music the best soother. Do try sniffing some different aromatic essential oils. They also soothing. Sorry if that sounds trite.