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← Return to Prolia treatment for osteoporosis: What is your experience?
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Prolia treatment for osteoporosis: What is your experience?
Osteoporosis & Bone Health | Last Active: Mar 29 11:52am | Replies (1218)Comment receiving replies
You can get these spinal fractures if you delay getting your prolia dose for as little as 2 mos. You must get an i n jection every 6-7 months. If you want to stop prolia you MUST transition to another drug (e g. Reclast). The doctor should advise you about this prior to starting Prolia. Amgen does have a warning about this in the insert in the box the injection comes in.
Replies to "You can get these spinal fractures if you delay getting your prolia dose for as little..."
That matches with my endocrinologist current recommendation too.
The problem with such a new drug is that people can be informed about the risks when they start it but never hear about later-discovered risks (aka ex post facto post-approval adverse effects yet to be added to package insert info). It pays to check for the newest package insert language from time to time as they get updated when the FDA requires it.
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This article says "as early as eight months" after discontinuing Prolia.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5915244/
My doctor didn't mention anything about Prolia side effects, only that I needed to take it to offset side effects of anastrozole that I started taking after completing chemo and radiation. I was already suffering nasty side effects from anastrozole when I got the Prolia injection and got some new side effects. That's when I looked up Prolia side effects and decided against using both of the drugs. I never saw the Prolia box, only the needle. It's been about six months since my one and only Prolia injection. I'm doing what I can to improve my bones with diet and exercise -- and even positive thinking (without it, there wouldn't be a placebo effect). If I get a recurrence of my cancer (which anastrozole is supposed to prevent, though it causes osteoporosis) or if I get spinal fractures, I'll post my experience. If I get run over by a truck, you probably won't be hearing from me. I do not recommend my particular decision to anyone else. If you are younger than me, have fewer age-related illnesses (and on and on), you will need to assess all the risk factors for your situation. Thank you to everyone who participates in the Mayo Clinic Connect conversations. I value your comments.