Living with Neuropathy - Welcome to the group

Posted by Colleen Young, Connect Director @colleenyoung, Jul 14, 2017

Welcome to the Neuropathy group.
This is a welcoming, safe place where you can meet other people who are dealing with neuropathy. Let’s learn from each other and share stories about living well with neuropathy, coping with the challenges and offering tips.

I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by volunteer patient Mentor John (@johnbishop) and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let’s chat. Why not start by introducing yourself? What concerns would you like to talk about?

Interested in more discussions like this? Go to the Neuropathy Support Group.

bravis | @bravis | Apr 15, 2022

Wow John. I also do the intermittent fasting. Maintaining about 150#'s. Carbs? Well, I keep it low. Lots of nuts and a small amount of dark chocolate daily - Trader Joes 72%. Occasional tee. Thanks John, I'm gona check these suggestions out. Busy day ahead today though. This is pretty cool.

vicjfaoro1 | @vicjfaoro1 | Apr 15, 2022

Thanks for the welcome. I feel very helpless with a grown son turned old with this. Suggestions are helpful .

avfan | @avfan | Apr 15, 2022

In reply to @davelobb12 "Has anybody heard of stem cell treatment or anything for help?" + (show)

There is quite a bit about this on the internet but I have yet to find a successful testimonial - the Swiss medica clinic push it but that seems to be a bit of a fruad

John, Volunteer Mentor | @johnbishop | Apr 15, 2022

In reply to @avfan "There is quite a bit about this on the internet but I have yet to find..." + (show)

Welcome @avfan, I agree with you about yet to find or hear of a successful stem cell treatment for neuropathy although I have read of folks spending a ton of money and receiving no benefits. There is another discussion on the topic with a good post by @colleenyoung that you might find helpful -- Does Stem Cell Therapy work for Neuropathy?: https://connect.mayoclinic.org/comment/205641/

Have you been diagnosed with neuropathy and considering stem cell therapy?

avfan | @avfan | Apr 15, 2022

In reply to @johnbishop "Welcome @avfan, I agree with you about yet to find or hear of a successful stem..." + (show)

Yes I have been diagnosed with PN and spend a lot of time searching for solutions. I have not discounted Stem Cell Therepy but have not found any one who can provide testimonials that it works!

John, Volunteer Mentor | @johnbishop | Apr 15, 2022

In reply to @vicjfaoro1 "Thanks for the welcome. I feel very helpless with a grown son turned old with this...." + (show)

Hi @vicjfaoro1, I know it must be difficult watching your son suffer from neuropathy and not know how to help. Although there is no cure, there is a lot of hope for finding something that helps to relieve the symptoms. Two of the best sites I've found that will help you learn more about the condition and different symptoms are:

-- Foundation for Peripheral Neuropathy - Treatments: https://www.foundationforpn.org/treatments/
-- Neuropathy Commons: https://neuropathycommons.org/neuropathy/neuropathy-overview

Are you able to share a little more about your son's neuropathy diagnosis and any treatments he's tried?

Jake | @jakedduck1 | Apr 15, 2022

@johnbishop
Have you noticed an improvement in your numbness since your better diet.
For whatever reason my numbness is improving.
Maybe it's the chocolate. if that’s the case it should be gone in no time.
Jake