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MCTD, Fibromyalgia, Reynauds

Autoimmune Diseases | Last Active: Sep 15, 2023 | Replies (78)

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@becsbuddy

@shani i found a discussion that might be more helpful to you since it’s all on sarcoidosis:
https://connect.mayoclinic.org/discussion/sarcoidosis-treatment/
You’ve had sarcoidosis for 15 years but only in the lungs. Is that correct? What symptoms did you have that made the doctors look at your heart?
Is gabapentin the only medication your doctor has put you on?

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Replies to "@shani i found a discussion that might be more helpful to you since it’s all on..."

Sorry to be so tardy., thanks for the sarcoidosis link, I’m enjoying this group. Yes I had lung sarcoidosis first. I’m using gabapentin for as yet undiagnosed severe lower leg pain originally from a med called tambicore, cellulitis. and severe liver damage caused by Lipitor. It makes me loopy and dizzy, but I NEED any or all of this to disappear. I’ve had two strokes and recent heart diagnoses of CHF and Afib so cardiologist said hmm, similar symptoms as sarcoidosis in heart but good news is that it could be treated! Music to my ears! As to taking other meds: cardiloc, fused, Pradaxa,Amlodipine, eltroxin, spirolactadone. Your thoughts appreciated as you seem to have the knowledge and experience I miss at my disposal since I was forced to stop working as an OT 4 years ago when my hip broke and everything went downhill from there. I had planned to work several more years and HATE not. I’m now in 3rd world country Israel, but about 10th, medically!.....would be helpful as I cannot have any type of surgery and my medicine chest is overflowing! many thanks.